The "personal experience" mentality

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby patientx » Mon Nov 15, 2010 5:59 pm

Personal experience:

MRV - one radiologist says it may show something, but unsure.
two other radiologists say veins are patent.
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Postby patientx » Mon Nov 15, 2010 6:01 pm

Cece wrote:We have a number of respected, intelligent CCSVI doctors who have made and shared their clinical observations.


Where have they shared these, and what are those clinical observations?
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Postby Cece » Mon Nov 15, 2010 6:15 pm

patientx wrote:
Cece wrote:We have a number of respected, intelligent CCSVI doctors who have made and shared their clinical observations.


Where have they shared these, and what are those clinical observations?

Dr. Sinan's speech at the July symposium; Dr. Sclafani's entire thread and everything in it; Dr. Haacke's recent presentation pdf; Dr. Siskin's expectation-moderating statement that a third of his patients do not see improvements; a paper coming out from Dr. Siskin (or is it another doc?) showing that stent migration has not been a risk in his use of stents; Dr. Simka and Dr. Gilhooly's speeches at the Glasglow conference; Dr. Dake's speech at the roundtable in Albany; Dr. Sclafani's paper in Endovascular Today; et cetera.
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schlemebo -- an old yiddish term meaning whatever you want

Postby 1eye » Mon Nov 15, 2010 6:56 pm

I am an unhealthy skeptic. I cannot see the improvements I want to see. All I have is the anecdotal impressions I have been told about by other people. See, I see me in the mirror every day, and from my perspective it seems there is not much difference. So I go to this group meeting that I attend every month. Because attendance is spotty, I often see people there I have not seen for quite a while. *Those* people make me walk on air, because *they* can see what I can't. Like the person I know who claims to be able to tell you have been liberated, by the change in your complexion. They say I have changed. That they hear it in my voice. They tell me I seem to be more lucid. All I can see is that I'm playing the piano better.

If it's placebo, at least it makes an interesting meeting.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby MrSuccess » Mon Nov 15, 2010 9:52 pm

PX - first day here at TIMS ?





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