Alberta Will Treat Complications from CCSVI Treatment

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Alberta Will Treat Complications from CCSVI Treatment

Postby Blaze » Tue Nov 16, 2010 5:46 pm

Here is a link to a CTV story that Alberta has announced they will help treat complications for Albertans arising from CCSVI treatment outside of Canada.

http://www.ctv.ca/CTVNews/TopStories/20 ... ta-101116/

So, the original CTV story on Sunday and yesterday's CBC story had some effect. Alberta's Health Minister is still calling liberation treatment "experimental," but it's a step in the right direction. Thanks also to the Albertans with MS who demonstrated at the Legislature today.

Quebec College of Physicians and Surgeons made a similar announcement last week. Hopefully, other provinces and territories will soon follow.
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Re: Alberta Will Treat Complications from CCSVI Treatment

Postby Cece » Tue Nov 16, 2010 6:58 pm

Fantastic news, Blaze. It would have been best if this had been the situation all along.
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Postby thornyrose76 » Tue Nov 16, 2010 7:18 pm

I'm in Manitoba and am going to Albany sometime in the spring...If I develop complications afterward, can I gett a referral to see a specialist in Alberta? Or bc it's deamed an experiamental treatment, will I not be allowed to see a doc in Alberta? :?:
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Postby dunkempt » Tue Nov 16, 2010 7:52 pm

Thornyrose: The spring is a long time away in terms of politics. BC and Alberta have changed their tune on a dime I would not worry about Manitoba too much yet.
-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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Postby thornyrose76 » Tue Nov 16, 2010 8:24 pm

You've got a point! And I did have that thought, this afternoon so your words are reassuring! Let's hope that Manitoba follows suit soon! :)
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Postby CCSVIhusband » Wed Nov 17, 2010 6:55 am

thornyrose76 wrote:You've got a point! And I did have that thought, this afternoon so your words are reassuring! Let's hope that Manitoba follows suit soon! :)


I hope (for all of you up north) ... that they then start to treat the narrowings, not just the complications after getting the narrowings corrected the first time ... :D
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ass backward

Postby elliberato » Wed Nov 17, 2010 8:01 am

This is so ridiculous. Oh we can treat you if you have complication. But we cannot treat you because MS is ruining your life. Its not as important. Such Bullshit and ass backwards. Get a grip world.
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Postby concerned » Wed Nov 17, 2010 10:00 am

So are they giving the Liberation Treatment (tm) to anyone that it didn't work for? Or are they just doing open neck surgery and the like for people with really big complications? Is a relapse a complication of the procedure?
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Postby elliberato » Wed Nov 17, 2010 11:11 am

good point. I have had 3 since my procedure. Is that a complication or do I have to wait until a stent is in my heart?
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Postby garyak » Wed Nov 17, 2010 11:22 am

this is very encouraging news .
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Postby Blaze » Wed Nov 17, 2010 11:23 am

My understanding is they will only treat complications. The fight continues to have the liberation treatment available in Canada.
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hello everyone

Postby 1_sindy » Mon Nov 22, 2010 10:22 pm

hello, i was at the rally, he was good in front of us 50-60 people telling us what we wanted to hear, that we are entitled to follow up care even if we went out of country for a procedure.
The next day in front of the house he back tracked on every thing he has said to us face to face.
People talk about snake oil he produces a tone of it.
Gord is no further ahead to get help to remove these blood clots then he was before we went to the rally.
Warfarin dose not dissolve blood clots nor does plavix they thin your blood.
yet there in Canada they have ways to dissolve them, but not if you have MS.
Keep safe everyone
one day Canada will get there crap together (well we can hope)
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Postby garyak » Tue Nov 23, 2010 6:52 pm

sindy-can you elaborate a bit more on what he said in the house the next day? I think about Gord and you a lot - take care, girl, gary
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Re: hello everyone

Postby thornyrose76 » Wed Nov 24, 2010 7:36 pm

1_sindy wrote:hello, i was at the rally, he was good in front of us 50-60 people telling us what we wanted to hear, that we are entitled to follow up care even if we went out of country for a procedure.
The next day in front of the house he back tracked on every thing he has said to us face to face.
People talk about snake oil he produces a tone of it.
Gord is no further ahead to get help to remove these blood clots then he was before we went to the rally.
Warfarin dose not dissolve blood clots nor does plavix they thin your blood.
yet there in Canada they have ways to dissolve them, but not if you have MS.
Keep safe everyone
one day Canada will get there crap together (well we can hope)


Not any time soon unfortunately...
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