This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed Jun 19, 2013 5:05 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 2 of 2
  [ 21 posts ]  Go to page Previous  1, 2
  Print view Previous topic | Next topic 
Author Message
PCakes
 Post subject:
PostPosted: Thu Nov 18, 2010 11:34 pm 
Offline
Family Elder
User avatar

Joined: Sun Dec 13, 2009 4:00 pm
Posts: 849
Location: Canada
MrSuccess wrote:
I expect the two punch approach ...... will put MS on it's ass.

Mr. Success


:D
Top
 Profile  
 
TFau
 Post subject:
PostPosted: Fri Nov 19, 2010 7:32 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 222
scorpion wrote:
MrSuccess wrote:
gordon - everything takes time . CCSVI research and development will take longer than we desire . There is a human safety issue ..... to be answered first . And I believe this stage .... is well underway .

That car that you purchased yesterday ...... was planned and designed .... about 3 years ago. It had to undergo and pass safety tests ..... before being brought to the market place. It didn't happen overnight .

your health .... your well being ...... is unmeasurably more important than any damn car or whatever.

the quotes from MSSC spokesman Stewart Wong ... are not out of line.

CCSVI will advance ..... to treatment ...... in a controlled safe pathway

Yes ...... the time it takes ...... is frustrating .


But what choice do we have ?






Mr. Success


Very well put!


Usually research like this is done to support a "first time in man" study. They should be doing these interesting academic studies in parallel with direct treatment studies. Even if only 10 out of 100 treated MS patients, and their doctors, anecdotally reported some benefit from the treatment, I would think that this would justify a jump-start in the process.
Top
 Profile  
 
PCakes
 Post subject:
PostPosted: Fri Nov 19, 2010 8:28 am 
Offline
Family Elder
User avatar

Joined: Sun Dec 13, 2009 4:00 pm
Posts: 849
Location: Canada
TFau wrote:
Usually research like this is done to support a "first time in man" study.


Good morning,
Could you explain this? Is it a known term?

Thanks
Top
 Profile  
 
yard1
PostPosted: Wed Jun 29, 2011 3:47 am 
Offline
Newbie
User avatar

Joined: Tue Jun 28, 2011 3:00 pm
Posts: 1
Gordon wrote:
What the MS society is doing is nothing but a waste of time, Even Zamboni said they are doomed to fail.

It is a disgrace and I am sick to my stomach knowing that these groups are again leading us astray....

Criminal ... They will meet there maker, one day


In that cases, many of them should be discharged from their current jobs..


__________________
CCTV footage of Alec Baldwin 'arresting' university student while armed with handcuffs.


Last edited by yard1 on Thu Jun 30, 2011 12:58 am, edited 3 times in total.

Top
 Profile  
 
PointsNorth
 Post subject:
PostPosted: Wed Jun 29, 2011 11:46 am 
Offline
Family Elder

Joined: Mon Sep 04, 2006 3:00 pm
Posts: 425
Location: LeftCoast Canada
PCakes wrote:
MrSuccess wrote:
But what choice do we have ?


Egos could be checked at the door. Doctors and scientists, the world over, could work in a unified manner to verify what appears to be a common debilitating problem within the MS community.

Healthcare providers could open their doors to compassionate treatment.

Healthcare could allow choices to be made. Open the doors to private clinics. Document the results. There is a large community willing to participate in a self funded clinical trial.


I'm with PCakes. There have been hundreds of angio safety studies done already + Albany's CCSVI-specific safety study. Let clinical trials happen in PARALLEL with ordinary treatment!
Top
 Profile  
 
MrSuccess
 Post subject:
PostPosted: Wed Jun 29, 2011 12:22 pm 
Offline
Family Elder
User avatar

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 831
safe ? maybe . maybe not . When I read Dr. Simka's report .... which included cases where the catheter[sp] got stuck .... and I also seem to remember Dr. Sclafani also enduring this situation.

This is a concern.

As is damage or injury to the internal walls of the vein being widened.

That said . I wholeheartedly endorse CCSVI medical intervention.

And I support these fine doctors. They are learning as they go.


The second mouse always get's the cheese ...........




Mr.Success
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 2 of 2
  [ 21 posts ]  Go to page Previous  1, 2

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Bravo MS Society of Canada-I Think?

bohemianbill

8

1353

Thu Dec 10, 2009 7:39 am

bohemianbill View the latest post

There are no new unread posts for this topic. MS society in canada bought : CCSVI.CA

[ Go to pageGo to page: 1, 2 ]

babiezuique

20

3707

Fri Mar 05, 2010 12:17 pm

Farmer View the latest post

There are no new unread posts for this topic. MS Society of Canada'a "advice" to Labs???

[ Go to pageGo to page: 1, 2, 3 ]

Someday

34

4607

Mon Apr 12, 2010 3:44 pm

Johnson View the latest post

There are no new unread posts for this topic. CEO of the MS Society of Canada testifies re CCSVI

[ Go to pageGo to page: 1, 2 ]

Brightspot

18

3137

Fri May 14, 2010 10:44 pm

Johnson View the latest post

There are no new unread posts for this topic. Is the MS Society of Canada becoming irrelevant to MSers?

fiddler

13

1610

Sat Jun 19, 2010 9:12 am

esta View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers
This site does not offer, or claim to offer, medical, legal, or professional advice. All treatment decisions should always be made with the full knowledge of your physicians.


All logos and trademarks in this site are property of their respective owners. Content is © 2002-2013 by thisisMS.com.

Advertise on the premier multiple sclerosis forum