Criminal MS Society of Canada spokesperson Stewart Wong

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Criminal MS Society of Canada spokesperson Stewart Wong

Postby Gordon » Thu Nov 18, 2010 9:42 am

“It’s true that there is a lot of research that seems to be pointing in different directions,” said MS Society of Canada spokesperson Stewart Wong. “It is very difficult to verify one way or the other. So we’re hoping that the studies that we’re funding will provide more definitive answers.”

The results of these studies will not be available for nearly two years and the timeline for a possible treatment in Canada gets cloudier after that.

“It’s hard to put a time on it,” said Wong, “but I think the first step would be research results, and if the research results warrant it, then clinical trials. And if a clinical trial shows really good benefit and safety, that’s when you would talk about public healthcare system funding.”
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Postby Rici » Thu Nov 18, 2010 10:17 am

Hi
http://www.komonews.com/home/video/106175483.html
Dr. Hubbard explained this tactic!
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Postby MrSuccess » Thu Nov 18, 2010 10:34 am

gordon - everything takes time . CCSVI research and development will take longer than we desire . There is a human safety issue ..... to be answered first . And I believe this stage .... is well underway .

That car that you purchased yesterday ...... was planned and designed .... about 3 years ago. It had to undergo and pass safety tests ..... before being brought to the market place. It didn't happen overnight .

your health .... your well being ...... is unmeasurably more important than any damn car or whatever.

the quotes from MSSC spokesman Stewart Wong ... are not out of line.

CCSVI will advance ..... to treatment ...... in a controlled safe pathway

Yes ...... the time it takes ...... is frustrating .


But what choice do we have ?






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Postby garyak » Thu Nov 18, 2010 10:50 am

unfortunately these studies were handed out to mainly researchers who are biased against ccsvi so if this research is tainted by that bias we may never go forward with ccsvi procedure here in canada.
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Postby Cece » Thu Nov 18, 2010 11:01 am

garyak wrote:unfortunately these studies were handed out to mainly researchers who are biased against ccsvi so if this research is tainted by that bias we may never go forward with ccsvi procedure here in canada.

Even with the bias, the truth will win out, it might just take longer. There are researchers around the world at work on this. Hang in there!!
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Postby welshman » Thu Nov 18, 2010 12:10 pm

The reference to Dr Hubbard's interview should be watched by everyone who has any interest in, or who is skeptical about, CCSVI and why Institutions like the MS Societies are totally letting down their Members and everyone with this disease.
Thank's for providing that link Rici - who knew you could get KOMO News
out of Seattle in Poland :D
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Postby esta » Thu Nov 18, 2010 12:26 pm

THANKS RICI :D
dr. hubbard rocks. it seems that the only drs who believe in CCSVI have a vested interest becausr someone dear to them has MS.
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Postby TMrox » Thu Nov 18, 2010 12:41 pm

just a minor observation.

The video of Dr Hubbard's interview has been shared 1,966 times in facebook and watched by many others.

http://www.komonews.com/home/video/106175483.html

The important thing is that there are a lot people who are aware of the procedure, who have been treated and those who have a genuine interest in testing Zamboni's theory.
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby thornyrose76 » Thu Nov 18, 2010 2:02 pm

I'm not in a position to wait-treatment now for me andd the science can work itself out, I'll know better than anyone if it has worked or not...
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Postby scorpion » Thu Nov 18, 2010 2:47 pm

MrSuccess wrote:gordon - everything takes time . CCSVI research and development will take longer than we desire . There is a human safety issue ..... to be answered first . And I believe this stage .... is well underway .

That car that you purchased yesterday ...... was planned and designed .... about 3 years ago. It had to undergo and pass safety tests ..... before being brought to the market place. It didn't happen overnight .

your health .... your well being ...... is unmeasurably more important than any damn car or whatever.

the quotes from MSSC spokesman Stewart Wong ... are not out of line.

CCSVI will advance ..... to treatment ...... in a controlled safe pathway

Yes ...... the time it takes ...... is frustrating .


But what choice do we have ?






Mr. Success


Very well put!
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Postby PCakes » Thu Nov 18, 2010 2:53 pm

MrSuccess wrote:But what choice do we have ?


Egos could be checked at the door. Doctors and scientists, the world over, could work in a unified manner to verify what appears to be a common debilitating problem within the MS community.

Healthcare providers could open their doors to compassionate treatment.

Healthcare could allow choices to be made. Open the doors to private clinics. Document the results. There is a large community willing to participate in a self funded clinical trial.
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@ Scorpion and Mr. Success

Postby Gordon » Thu Nov 18, 2010 4:20 pm

What the MS society is doing is nothing but a waste of time, Even Zamboni said they are doomed to fail.

It is a disgrace and I am sick to my stomach knowing that these groups are again leading us astray....

Criminal ... They will meet there maker, one day
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Postby MrSuccess » Thu Nov 18, 2010 6:41 pm

pcakes - doctors and scientists around the world ARE working hard at understanding the concept and pitfalls of CCSVI.

They are advancing the research ..... carefully .... the byproduct of caution is the seemingly glacial pace of practical results.

I must advise you ..... and everyone who cares to listen ..... to listen carefully to the words of Professor Zamboni .... :idea: :idea: :idea:

And that includes the medical profession.



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Postby PCakes » Thu Nov 18, 2010 7:10 pm

MrSuccess wrote:pcakes - doctors and scientists around the world ARE working hard at understanding the concept and pitfalls of CCSVI.


I agree.. my emphasis was on 'unified'.. maybe this is happening?? and I pray that I am wrong worrying that time is passing quickly while scientists and doctors replicate each other's work.
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Postby MrSuccess » Thu Nov 18, 2010 11:18 pm

pcakes - some are saying .... CCSVI and treatment are just at the beginning . Who really knows ?

you know what is very encouraging ? The vast amount of CCSVI investigation and treatments , that seem to only have happened in the last year. It must give one great hope .... to see what the next 12 months will bring.

Will there be a CCSVI Trial ..... producing expected results ?

I would say - YES - ... based on the explosion of informational growth.

And best of all ...... the new kid on the block ..... will no doubt speed up the production to market ...... of effective DMD's ...... at an affordable price .

I expect the two punch approach ...... will put MS on it's ass.




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