CCSVIhusband wrote:Found it ...concerned
Joined: May 20, 2010
Posted: Fri Nov 26, 2010 1:37 am Post subject:
Thanks Lyon and Cece.
Also, my mom was "screened" for CCSVI almost a year ago. They found narrowing, but not stenosis.
From the thread "Experimental MS treatments and the ethical issues." page 2
You can't find 'stenosis' per se by doppler (and that's a broad term anyway - and if the issue is valves as our doctors conclude, those are well below the clavicle, and would be seen via venogram, which this case seems to warrant based on "narrowing") ... you could see narrowings though. (you can ask Dr. Sclafani what he'd do if he saw narrowings on an ultra-sound though ... he's available)
again, I'm not getting into a tit-for-tat ... I'll just let the statements and arguments of others continue. Just think all the cards should be laid on the table for everyone to see what has been said and when.
"================" <--- the fray
I think you should have scrolled down to this part:
I'm pretty sure I read Dr. Sclafani say that a narrowing is not necessarily a stenosis. The diagnosis said "Some narrowing, but no stenosis.", although, I'll give her that the diagnostician was not trained in the "Zamboni method".