Mostic was disappointed and desperate. His friends and loved ones raised another $8,000 US to send him back to Costa Rica after they had trouble getting a specialist to see him in Canada.
"They didn't want to touch him because he was done outside of Canada," Jelin said
This is the eighth paragraph any CBC story. To say that the story is ignoring the fact that this poor soul couldn't get treated in Canada is incorrect.
I understand how emotional this topic is for all MS patients, myself included, but please, let's try not to find monsters hiding under the bed every time a negative piece about CCSVI has been published. By far, the coverage in Canada has been overwhelmingly positive. Unfortunately, cases such as this one, and last week's story on stent thrombosis, are just now coming to light. It would be irresponsible of the press not to report them.
I do agree that more publicity should be given to the Tysabri deaths, but at this point I think most MS patients are aware of the risks inherent in taking the drug. At least here in the states, patients taking Tysabri have to sign off on a document that explicitly talks about PML.
I don't think that the average patient understands the risks involved with traveling to far-flung clinics for liberation procedures that include stents. Most have seen story after story about people returning with wonderful news to report, and have seen video after video on YouTube of patients demonstrating the benefits they've seen after liberation. This darker side of the story needs to be told, so that people can make informed decisions about just what actions they should and should not be taking.
Don't forget, many patients are acting strictly on what they see or read in the news media. The majority of MS patients are not as well-informed as the folks who frequent sites such as TIMS…