It's about time, Dr. Sclafani

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby MS_HOPE » Thu Nov 25, 2010 10:47 am

What fabulous news on this Thanksgiving Day - I am definitely giving thanks!! So happy for you, Dr. Sclafani, since you've been aching to get back into treatment!

When you come to NC (I hope!), may I be your patient in Cary? :D

Any idea on cost yet?

Dr. Sclafani, I believe this is the BIG news you've promised us - it sounds like a life-changer for you as well as, potentially, for pwMS. Will you be able to concurrently hold your position with SUNY Downstate, or will this be a completely new chapter in your career?

Wishing you much fulfillment and success as you continue moving forward to help people with MS get their lives back! Your presence on TIMS has been amazingly generous, educational and hope-inspiring for us. My heartfelt thanks.
CCSVI:  Making Sense of MS
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Postby garyak » Thu Nov 25, 2010 11:02 am

I WIPED A TEAR TODAY-OF CHEAR FOR OUR HERO DR SCLAFANI. tytyty
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Postby soapdiva884 » Thu Nov 25, 2010 11:09 am

garyak wrote:I WIPED A TEAR TODAY-OF CHEAR FOR OUR HERO DR SCLAFANI. tytyty


I too have cried some tears today for our hero Dr. Sclafani and all the people who will benefit from his compassion and expertise. Way to go Dr. S. and Holly!!!!!!!!!
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Re: It's about time, Dr. Sclafani

Postby PCakes » Thu Nov 25, 2010 11:47 am

bestadmom wrote:If you are on Dr. Sclafani’s list from way back when, you will still get to work with the amazing Holly Barr, who started her tenure with AAC in October. Email ccsviliberation@gmail.com if you seek treatment with Dr. Sclafani. To get on the AAC general diagnostic and treatment list, contact Holly at CCSVI@AAC-llc.com.

Happy Thanksgiving,
Michelle, the crazy lady with MS who found the lunatic fringe from Brooklyn


Hi,

Bit of confusion here and on facebook.
Am I reading this right?... if you hope to be treated 'specifically' by Dr Sclafani ccsviliberation@gmail.com and if your wish is to be placed on the AAC 'general' list CCSVI@AAC-llc.com ?

Thanks and Happy Thanksgiving
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A great Thanksgiving gift

Postby prairie » Thu Nov 25, 2010 12:11 pm

Thanks Dr. Sclafani for giving the MS community a wonderful Thanksgiving gift.
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Postby bestadmom » Thu Nov 25, 2010 12:31 pm

PCakes, you've got it right. I have a strong feeling that Dr. S's inbox will have 1000 emails by tomorrow, and Holly will have her hands free to eat left over turkey!
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Postby ozarkcanoer » Thu Nov 25, 2010 12:46 pm

This is a great leap for Dr Sclafani and a blessing to people with MS !!

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Postby L » Thu Nov 25, 2010 12:48 pm

Glad to hear that you're officially open for treating once again! It must be a huge relief to finally get there. I'm glad that your patience paid off!
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Postby simone » Thu Nov 25, 2010 12:51 pm

So happy to hear this wonderful news!
Your unwavering dedication to alleviate human suffering is so very appreciated Dr. Sclafani.
Your work to get centers set up is brilliant and much needed.
Thank you for all that you do!
Thank you Michelle for persevering.
Thank you Holly for all your doings and staying with Dr. Sclafani and us....
Thank you all as well! Thanks for giving and more....
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Re: It's about time, Dr. Sclafani

Postby thornyrose76 » Thu Nov 25, 2010 1:13 pm

Blaze wrote:Way to go Dr. Scalafani!

Cece wrote:
:D
I have to get back to my nonTIMS family. :D


Cece, enjoy this day with your "other" family.

Happy Thanksgiving to our American friends. We in Canada had our Thanksgiving last month, but with no good news on the CCSVI horizon here to give thanks for. Hopefully, we will in the future (Well, I can always dream!)


How true!
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Postby elyse_peace » Thu Nov 25, 2010 11:15 pm

Thank you, Michelle, for contacting Dr. Sclafani (in the first place!) and thanks again for posting this happy news. That makes this the best Thanksgiving ever! :D
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Postby David1949 » Fri Nov 26, 2010 2:52 pm

This is the best news I've heard in a long time. Thank you Dr. Sclafani!! Thank you, thank you!!
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Postby CaptBoo » Fri Nov 26, 2010 8:25 pm

I'm pretty sure that Atlanta Access Care with Dr. Sullivan, who did mine two months ago is in this same group. it was a great experience.
<div>There be no dragons   ...Reese Palley</div>
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Postby Cece » Fri Nov 26, 2010 9:36 pm

CaptBoo wrote:I'm pretty sure that Atlanta Access Care with Dr. Sullivan, who did mine two months ago is in this same group. it was a great experience.

Del Mar Vein Center is also in the group. :D
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Postby HollyBarr » Sat Nov 27, 2010 6:14 am

bestadmom wrote:PCakes, you've got it right. I have a strong feeling that Dr. S's inbox will have 1000 emails by tomorrow, and Holly will have her hands free to eat left over turkey!


Not exactly true but out of respect to Dr. S's having an opportunity to eat some left-over turkey himself I'd like to point out that emailing me at CCSVI@aac-llc.com and simply requesting "Sclafani/Brooklyn" is equally effective.
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