This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Mon May 20, 2013 5:56 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 2 of 3
  [ 34 posts ]  Go to page Previous  1, 2, 3  Next
  Print view Previous topic | Next topic 
Author Message
MS_HOPE
 Post subject:
PostPosted: Thu Nov 25, 2010 10:47 am 
Offline
Family Elder
User avatar

Joined: Fri Jun 11, 2010 3:00 pm
Posts: 132
Location: North Carolina, USA
What fabulous news on this Thanksgiving Day - I am definitely giving thanks!! So happy for you, Dr. Sclafani, since you've been aching to get back into treatment!

When you come to NC (I hope!), may I be your patient in Cary? :D

Any idea on cost yet?

Dr. Sclafani, I believe this is the BIG news you've promised us - it sounds like a life-changer for you as well as, potentially, for pwMS. Will you be able to concurrently hold your position with SUNY Downstate, or will this be a completely new chapter in your career?

Wishing you much fulfillment and success as you continue moving forward to help people with MS get their lives back! Your presence on TIMS has been amazingly generous, educational and hope-inspiring for us. My heartfelt thanks.

_________________
CCSVI:  Making Sense of MS
Top
 Profile  
 
garyak
 Post subject:
PostPosted: Thu Nov 25, 2010 11:02 am 
Offline
Family Elder
User avatar

Joined: Sun May 30, 2010 3:00 pm
Posts: 314
Location: grande prairie , alberta,canada
I WIPED A TEAR TODAY-OF CHEAR FOR OUR HERO DR SCLAFANI. tytyty
Top
 Profile  
 
soapdiva884
 Post subject:
PostPosted: Thu Nov 25, 2010 11:09 am 
Offline
Family Elder
User avatar

Joined: Mon Apr 05, 2010 3:00 pm
Posts: 167
garyak wrote:
I WIPED A TEAR TODAY-OF CHEAR FOR OUR HERO DR SCLAFANI. tytyty


I too have cried some tears today for our hero Dr. Sclafani and all the people who will benefit from his compassion and expertise. Way to go Dr. S. and Holly!!!!!!!!!
Top
 Profile  
 
PCakes
PostPosted: Thu Nov 25, 2010 11:47 am 
Offline
Family Elder
User avatar

Joined: Sun Dec 13, 2009 4:00 pm
Posts: 849
Location: Canada
bestadmom wrote:
If you are on Dr. Sclafani’s list from way back when, you will still get to work with the amazing Holly Barr, who started her tenure with AAC in October. Email ccsviliberation@gmail.com if you seek treatment with Dr. Sclafani. To get on the AAC general diagnostic and treatment list, contact Holly at CCSVI@AAC-llc.com.

Happy Thanksgiving,
Michelle, the crazy lady with MS who found the lunatic fringe from Brooklyn


Hi,

Bit of confusion here and on facebook.
Am I reading this right?... if you hope to be treated 'specifically' by Dr Sclafani ccsviliberation@gmail.com and if your wish is to be placed on the AAC 'general' list CCSVI@AAC-llc.com ?

Thanks and Happy Thanksgiving
Top
 Profile  
 
prairie
PostPosted: Thu Nov 25, 2010 12:11 pm 
Offline
Family Member
User avatar

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 44
Thanks Dr. Sclafani for giving the MS community a wonderful Thanksgiving gift.
Top
 Profile  
 
bestadmom
 Post subject:
PostPosted: Thu Nov 25, 2010 12:31 pm 
Offline
Family Elder
User avatar

Joined: Mon May 18, 2009 3:00 pm
Posts: 722
Location: CT
PCakes, you've got it right. I have a strong feeling that Dr. S's inbox will have 1000 emails by tomorrow, and Holly will have her hands free to eat left over turkey!
Top
 Profile  
 
ozarkcanoer
 Post subject:
PostPosted: Thu Nov 25, 2010 12:46 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
This is a great leap for Dr Sclafani and a blessing to people with MS !!

ozarkcanoer
Top
 Profile  
 
L
 Post subject:
PostPosted: Thu Nov 25, 2010 12:48 pm 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
Glad to hear that you're officially open for treating once again! It must be a huge relief to finally get there. I'm glad that your patience paid off!
Top
 Profile  
 
simone
 Post subject:
PostPosted: Thu Nov 25, 2010 12:51 pm 
Offline
Family Member
User avatar

Joined: Tue Dec 08, 2009 4:00 pm
Posts: 38
So happy to hear this wonderful news!
Your unwavering dedication to alleviate human suffering is so very appreciated Dr. Sclafani.
Your work to get centers set up is brilliant and much needed.
Thank you for all that you do!
Thank you Michelle for persevering.
Thank you Holly for all your doings and staying with Dr. Sclafani and us....
Thank you all as well! Thanks for giving and more....
Top
 Profile  
 
thornyrose76
PostPosted: Thu Nov 25, 2010 1:13 pm 
Offline
Family Elder
User avatar

Joined: Mon Nov 23, 2009 4:00 pm
Posts: 462
Blaze wrote:
Way to go Dr. Scalafani!

Cece wrote:

:D
I have to get back to my nonTIMS family. :D


Cece, enjoy this day with your "other" family.

Happy Thanksgiving to our American friends. We in Canada had our Thanksgiving last month, but with no good news on the CCSVI horizon here to give thanks for. Hopefully, we will in the future (Well, I can always dream!)


How true!
Top
 Profile  
 
elyse_peace
 Post subject:
PostPosted: Thu Nov 25, 2010 11:15 pm 
Offline
Family Elder
User avatar

Joined: Thu Dec 31, 2009 4:00 pm
Posts: 172
Location: Putnam, NY
Thank you, Michelle, for contacting Dr. Sclafani (in the first place!) and thanks again for posting this happy news. That makes this the best Thanksgiving ever! :D
Top
 Profile  
 
David1949
 Post subject:
PostPosted: Fri Nov 26, 2010 2:52 pm 
Offline
Family Elder

Joined: Mon Aug 23, 2010 3:00 pm
Posts: 596
This is the best news I've heard in a long time. Thank you Dr. Sclafani!! Thank you, thank you!!
Top
 Profile  
 
CaptBoo
 Post subject:
PostPosted: Fri Nov 26, 2010 8:25 pm 
Offline
Family Elder
User avatar

Joined: Wed Aug 18, 2010 3:00 pm
Posts: 122
Location: SC, NM
I'm pretty sure that Atlanta Access Care with Dr. Sullivan, who did mine two months ago is in this same group. it was a great experience.

_________________
<div>There be no dragons   ...Reese Palley</div>
Top
 Profile  
 
Cece
 Post subject:
PostPosted: Fri Nov 26, 2010 9:36 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8506
CaptBoo wrote:
I'm pretty sure that Atlanta Access Care with Dr. Sullivan, who did mine two months ago is in this same group. it was a great experience.

Del Mar Vein Center is also in the group. :D
Top
 Profile  
 
HollyBarr
 Post subject:
PostPosted: Sat Nov 27, 2010 6:14 am 
Offline
Family Member
User avatar

Joined: Sun Mar 14, 2010 4:00 pm
Posts: 33
bestadmom wrote:
PCakes, you've got it right. I have a strong feeling that Dr. S's inbox will have 1000 emails by tomorrow, and Holly will have her hands free to eat left over turkey!


Not exactly true but out of respect to Dr. S's having an opportunity to eat some left-over turkey himself I'd like to point out that emailing me at CCSVI@aac-llc.com and simply requesting "Sclafani/Brooklyn" is equally effective.
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 2 of 3
  [ 34 posts ]  Go to page Previous  1, 2, 3  Next

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. MSers DO NOT VOTE LABOUR - Election Time Its our time

silverbirch

10

1203

Sun Apr 04, 2010 7:18 am

silverbirch View the latest post

There are no new unread posts for this topic. For anyone scheduled with Dr. Sclafani...

[ Go to pageGo to page: 1, 2, 3, 4 ]

Cece

53

9063

Thu Apr 08, 2010 9:23 pm

copacabana View the latest post

There are no new unread posts for this topic. BEST WISHES, DR. SCLAFANI

HappyPoet

14

2141

Tue Jul 27, 2010 10:20 pm

NHE View the latest post

There are no new unread posts for this topic. Dr Sclafani in Belfast

GiCi

10

1760

Wed Sep 15, 2010 9:48 am

Edser View the latest post

There are no new unread posts for this topic. Dr. Sclafani interview

[ Go to pageGo to page: 1, 2, 3, 4 ]

Cece

45

4489

Thu Dec 23, 2010 8:19 pm

hope410 View the latest post

 


Who is online

Users browsing this forum: annahopes

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: