It's about time, Dr. Sclafani

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

It's about time, Dr. Sclafani

Postby bestadmom » Wed Nov 24, 2010 10:24 pm

It’s been more than one year since I broke the CCSVI story to Dr. Sclafani and it’s our one year anniversary of our first face to face meeting – 52 weeks next Tuesday when Dr. Sclafani and his team agreed to treat me.

I hit pay dirt when Dr. Sclafani responded to my email in October 2009. It’s been a year of excitement, opportunity, steep learning curves, breathtaking outcomes, challenges, and disappointments but, you now know his dedication to you and me is stronger than ever. We’ve learned that his commitment to the MS community is unwavering.

Today, he announced that he will resume CCSVI treatments at American Access Care LLC. At a time in his life when he could retire, his loyalty to us will shape the next phase of his career.

Beginning in January, Dr. Sclafani will treat patients with CCSVI as he develops a standardized comprehensive diagnostic, treatment and aftercare network for American Access Care at their 30+ freestanding interventional radiology treatment centers in 12 states, so your care can be close to home. Dr. Sclafani will continue to practice in New York City.

If you are on Dr. Sclafani’s list from way back when, you will still get to work with the amazing Holly Barr, who started her tenure with AAC in October. Email ccsviliberation@gmail.com if you seek treatment with Dr. Sclafani. To get on the AAC general diagnostic and treatment list, contact Holly at CCSVI@AAC-llc.com.

Happy Thanksgiving,
Michelle, the crazy lady with MS who found the lunatic fringe from Brooklyn
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Postby Cece » Wed Nov 24, 2010 11:33 pm

"Way back when" - has it been that long?

Such great news, Michelle. :)

"And those who were seen dancing were thought to be insane by those who could not hear the music. (Friedrich Nietzsche)."
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Postby fernando » Thu Nov 25, 2010 5:42 am

Great, great news.

I am really happy for Dr. S and all of their present and future patients.

Dr S. sei un uomo bravissimo!

Fernando
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Postby ErikaSlovakia » Thu Nov 25, 2010 5:49 am

Great news! Thank you!
Congratulations!!!
I am going to dance :D
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby Mathd » Thu Nov 25, 2010 6:13 am

Good news!!
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Re: It's about time, Dr. Sclafani

Postby anamishguy » Thu Nov 25, 2010 6:41 am

The website does not give locations. Does anyone know what states are involved?

bestadmom wrote:It’s been more than one year since I broke the CCSVI story to Dr. Sclafani and it’s our one year anniversary of our first face to face meeting – 52 weeks next Tuesday when Dr. Sclafani and his team agreed to treat me.

I hit pay dirt when Dr. Sclafani responded to my email in October 2009. It’s been a year of excitement, opportunity, steep learning curves, breathtaking outcomes, challenges, and disappointments but, you now know his dedication to you and me is stronger than ever. We’ve learned that his commitment to the MS community is unwavering.

Today, he announced that he will resume CCSVI treatments at American Access Care LLC. At a time in his life when he could retire, his loyalty to us will shape the next phase of his career.

Beginning in January, Dr. Sclafani will treat patients with CCSVI as he develops a standardized comprehensive diagnostic, treatment and aftercare network for American Access Care at their 30+ freestanding interventional radiology treatment centers in 12 states, so your care can be close to home. Dr. Sclafani will continue to practice in New York City.

If you are on Dr. Sclafani’s list from way back when, you will still get to work with the amazing Holly Barr, who started her tenure with AAC in October. Email ccsviliberation@gmail.com if you seek treatment with Dr. Sclafani. To get on the AAC general diagnostic and treatment list, contact Holly at CCSVI@AAC-llc.com.

Happy Thanksgiving,
Michelle, the crazy lady with MS who found the lunatic fringe from Brooklyn
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Re: It's about time, Dr. Sclafani

Postby drsclafani » Thu Nov 25, 2010 6:59 am

anamishguy wrote:The website does not give locations. Does anyone know what states are involved?


New York
Pennsylvania
New Jersey
Virginia
North or South Carolina
Illinois
California

There are other centers in other cities but we decided to develop this in stages. I hope i didnt forget anyone There is lots of work to do
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Re: It's about time, Dr. Sclafani

Postby Cece » Thu Nov 25, 2010 7:05 am

anamishguy wrote:The website does not give locations. Does anyone know what states are involved?

try here and click facilities in the middle of the page, not "Our facilities" on the left which is a dead end:
http://www.americanaccesscare.com/brooklyn.html

But as Dr. Sclafani just said, not all of them are developed.
:D
I have to get back to my nonTIMS family. :D
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Postby magoo » Thu Nov 25, 2010 7:18 am

Happy to hear this announcement Dr. Sclafani!!! ;)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Re: It's about time, Dr. Sclafani

Postby Blaze » Thu Nov 25, 2010 7:24 am

Way to go Dr. Scalafani!

Cece wrote:
:D
I have to get back to my nonTIMS family. :D


Cece, enjoy this day with your "other" family.

Happy Thanksgiving to our American friends. We in Canada had our Thanksgiving last month, but with no good news on the CCSVI horizon here to give thanks for. Hopefully, we will in the future (Well, I can always dream!)
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Re: It's about time, Dr. Sclafani

Postby HollyBarr » Thu Nov 25, 2010 7:50 am

bestadmom wrote:
If you are on Dr. Sclafani’s list from way back when, you will still get to work with the amazing Holly Barr, who started her tenure with AAC in October. Email ccsviliberation@gmail.com if you seek treatment with Dr. Sclafani. To get on the AAC general diagnostic and treatment list, contact Holly at CCSVI@AAC-llc.com.

Happy Thanksgiving,
Michelle, the crazy lady with MS who found the lunatic fringe from Brooklyn


Thanks, Michelle, but you're the Amazing "Crazy Lady" Michelle who started all this and may very well, before all this is through, have changed hundreds of thousands of lives either directly or indirectly. All hats off to the Amazing Michelle and the Amazing Dr. Sclafani!!!

That said I just wanted to let everyone know on an administrative level that though I must soon start cooking for dinner (Happy Thanksgiving everyone!) I am now preparing a new waiting list application I will be sending out to everyone who previously expressed interest in getting treated by Dr. Sclafani. I need current, and slightly different, information at this point and this is the most efficient way to gather it. When you receive my email, please respond immediately if you're still interested in being treated by Dr. Sclafani. If you don't receive a new application from me by the end of next week, please email me at CCSVI@aac-llc.com with "Send New Application" in your email's subject line and nothing in the message itself, please. (I'll be swamped!)

I will assume that you're interested in treatment from Dr. Sclafani since your initial inquiry was about his waiting list, so will have already filled in the part of the application form that indicates this. However as both Michelle and Dr. Sclafani have indicated both Dr. Sclafani and I are now working for American Access Care, LLC and at least in the future will be able to provide other treatment options nationwide. If, for instance, mobility issues are such that you might prefer to wait until an American Access Care Center much closer to where you live can provide you with treatment, feel free to change my entry to indicate this.

To perhaps reiterate the only email address you should currently be using to contact me specifically is CCSVI@aac-llc.com, but you can also PM me here.

I am so very, very happy to be able to offer you assistance, all thanks to Dr. Sclafani and Michelle. It is indeed a day for Thanksgiving!
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Postby burg » Thu Nov 25, 2010 8:09 am

CONGRATULATIONS DR. S !!!!!!!!!!!!!!!!!

NOW THIS IS A REAL THANKSGIVING !!!!!!!!
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Postby lucky125 » Thu Nov 25, 2010 8:35 am

I feel so proud and lucky to be among Michelle's friends. Her tireless work on our behalf is nothing short of stunning.

Thank you Michelle for sharing your discovery of Dr. S with the rest of us. You are a force to be reckoned with!

Thank you, too, Dr. S. for your willingness to jump into these murky waters with a bunch of uber-motivated, intelligent, slightly nutty MSers. We are so glad to have you on our team!

Happy Turkey Day!

xo, Nicole
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby HappyPoet » Thu Nov 25, 2010 8:44 am

Dear Michelle,

Please accept my and my family's thanks for all you did to find Dr. Sclafani. You're an angel, and we certainly hope you feel like one!

Happy Thanksgiving.

:)
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Postby burg » Thu Nov 25, 2010 8:51 am

Thank you Michelle for everything especially Dr. S.

There is a saying in the Jewish Talmud.. Saving one life is like saving the world.

I can't imagine what you have done. Kudos Michelle !!!
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