dania wrote:I have been on Coumadin for over 10 years and it did not prevent this with me. So complex this procedure. It is turning out to be not as simple as we first thought.
Cece wrote:dania wrote:I have been on Coumadin for over 10 years and it did not prevent this with me. So complex this procedure. It is turning out to be not as simple as we first thought.
You had the hypercoaguability issues, didn't you.
Is hypercoaguability something that a person might have and not know it or is it fairly easy to recognize the symptoms and be diagnosed?
It's a definite risk factor going into this and, with the large numbers of people getting this treatment, there will be others with hypercoaguability.
blossom wrote:dania, when you had the procedure were the doctors aware you had this?
i was trying to look up what i have and see if it is similiar to what you have. i have mthfr short for methylenetrahydrofolate. which is a genetic thing making me more prone to clotting, heart attack, vascular disease and strokes. i had never had a problem but a neuro. running blood work on me found it. he has me on an asparin and folic acid.
before i had the ccsvi procedure i told the dr. in plenty of time and mentioned it even right before we went the surgery room. actually, by her response and look i got the feeling she had never heard of it. "i could be wrong". but she said it shouldn't effect anything.
i have had 1 regular doppler in my hometown and they said no clots and i had flow. but it still is a worry to me. as i am worse.
i think the doctors should run a test for this stuff or require a test before hand just like they test to see if your kidneys are ok. then they could at least maybe have a better idea what blood thinners etc. would work best.
or in some cases just not risk it until there is more known and a better way to prevent this from happening.
i wonder how many of the people having clotting problems after the procedure are not even aware they have this. but i think the doctors should be takeing this into consideration more than what some are before they just do it and send you home. it would be very imporant to be put on the right medicine right off the bat. the clots could be starting before you have time to see the doctor when you get home "if you have one to come home to". i don't think this is that rare and i got a feeling a lot of people with ms have it. just my opinion.
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