MA wrote:There is a center "Pacific Interventional" offering this, has anyone been there? how was your experience ther?
Hi, I just returned from Newport Beach. I had the procedure done at Pacific Interventional. Dr. Hewitt seems to be the head surgeon. Dr. Harris seems to be the main CCSVI surgeon more recently. Dr. Grawal is next, and that is who did my procedure because of a scheduling conflict. I was worried because I did not want to get someone who was not as experienced with CCSVI or angioplasty for that matter. I was told that she is very nice. I did not care if she was nice as long as she was experienced with the procedure.
The staff seems overwhelmed. I had the MRV done in the Buffalo study and forwarded that cd to PI. The Cd was lost and one of the staff members was nice enough to track it down at UPS. Once they found the CD, Dr. Harris talked to me and told me that I indeed had blockages that were visible in both jugulars.
They made the appointment quickly, which is what lead to the scheduling conflict. After I booked the flight, plans, etc based on one date, they had to change it and put me with Dr. Grawal. At this point, I just held my breath and moved forward with the procedure, hoping that Dr. Grawal was as experienced as Dr. Harris. They confirmed she had done many procedures, etc. They basically ask you to sign away your rights to a trial if they are negligent. They do this after you spend a day traveling out there. I think that is something they should let you read and agree to before flying out there. The pre appt the day before Dr. Grawal was over an hour late so I went through all of my questions with Dr. Harris who answered everything knowledgeably. I just would have liked to have met the surgeon who was going to be doing the procedure.
The staff called me in to do the procedure 2 hours before my scheduled time. I went in thinking that they would start me 2 hours earlier. That was not the case. A prep nurse wanted to get me set up early so she could head out early. Meanwhile, I sat looking up at the ceiling for 2 hours. I still did not get a moment to meet Dr. Grawal until I was about to be rolled into the procedure. And yes, she was very nice.
Once the procedure began, I did not feel the incision for the catheter. However when the balloon was expanded in the jugular, I almost jumped off the bed. It hurt alot! Each balloon expansion was painful. I was amazed that I was awake the whole procedure and I remember everything. When Dr. Grawal got to the azygous vein, she was having a problem. This lasted for a while. Finally she had to get Dr. Hewitt. All of this while I am awake and watching! He came in and put his elbow into me and somehow that opened a valve maybe and she got through? Because a few moments later she ballooned the azygous and pain!
I was so happy when it was all over. Relieved.
I did not have the rush of warmth to the extremities nor the lifting of fog or the relief from fatigue. Frankly, I am more exhausted at the moment and I am hoping and praying that it is just jet lag and recuperation time needed from the procedure and not MS flare up. It's only been a week. I am trying to ask about after care, records, but it's been a little tough. Once you are out of there, I guess you are out of there...