Thanks for these details on the NMSS finances. I wonder though where/how you arrived at this:No wonder they could only swing a paltry $6 million into CCSVI research
I'm only familiar with a total of $2.4 million, which is a combined total of the U.S. and Canadian MS Societies support of CCSVI research.
Over $2.4 Million Committed to Support 7 Initial CCSVI Grants to Determine the Role of CCSVI (Venous Insufficiency) in MS Disease Process
$2.4 million is even more paltry....if it's accurate.
VeeBee wrote:"Our aim is to provide MS patients, caregivers, and medical professionals with a definitive resource for learning"
Sounds good but pointless if no-one sees it.
Currently CCSVIalliance need others to believe that they are first class advocates but fall at the first technical hurdle.
bluesky63 wrote:Boo Bear, I don't know if you looked thoroughly at the links I posted, but I would be interested in your take on the specific documents on the NMSS site. I am also still left wondering about the overall financial question my searching gave me: it seems they are free to crunch their financial data different ways. They can consolidate *all* national data, or they can use only the central office and let each chapter be its own individual franchise. What does this imply to us as the ultimate "owners" of this "business"?
Edit -- Sorry if this info I have posted is a sidetrack -- I think what has struck me more than anything is the difference between the massive machine of the worldwide MS fundraising efforts and the personal efforts that I have seen from people like Cheerleader. Perhaps that's exactly how Sylvia Lawry began. Cheerleader, I will quit posting in this thread now and end by saying a huge thank you for your efforts, which have had a direct positive effect on my family's life, which in turn ripples out. Thank you.
BooBear wrote:I checked out your links, BlueSky, as well as reviewed all of the financial statements available on the NMSS site (including the tax return) for 2009.
From what I can pull together, the NMSS provides consolidated financials for the home office (in NY) and all of the individual chapters. Tax returns are also filed on a consolidated level.
For the individual chapters, there is a requirement to keep books assigned to that chapter (which are consolidated in kind with the home office). From everything I noted in the financials, they follow GAAP (generally accepted accounting principles) equally at the chapter and home office.
Each "franchise"- good analogy- uses monies from the home office as well as contributes to the home office for the general fund. The line item detail on those transactions are noted in the consolidated financials; essentially, the money spent by the Society in support of those "franchises" is noted as an expense and the money raised by those franchises and contributed to the Society appears as revenue.
I am sure that the idea was to allow for local dollars to support local patients, as well as to comply with state laws on non-profits and recordkeeping (and possibly to take advantage of tax breaks where applicable), etc. Also, as the Society has employees, it would be necessary to have the franchises established in the operating states for employee tax collection and reporting, etc.
Net/net, all the money is spent in pretty much the same way- consolidated overall.
<meta name="keywords" content="CCSVI, Multiple Sclerosis...blah,blah, disaster"
should be "science advisory board"
These are assuming proper keyword research has been done, which it hasn't.
Are h tags being used? b? I? repetition?
Anchor text "CCSVI alliance US"?
"Our aim is to provide MS patients, caregivers, and medical professionals with a definitive resource for learning"
Sounds good but pointless if no-one sees it.
<meta name="description" content="The Science Advisory Board of CCSVI Alliance was formed to advise us on current research and study programs, and make recommendations for improving services to the patient and medical community" />
NHE wrote:I agree that the page addresses are a little too cryptic. However, if you scroll down a bit in the source code for the page header, then you'll find...
Malden wrote:Is it possible for someone to 'take advantage of tax breaks' by giving money to non-for-profit, getting tax returns for that donation, and then, as a non-profit director, buy yourself an airplane ticket?
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