This Is MS Multiple Sclerosis Community: Knowledge & Support

So what do you suggest that I do, concerned, not have the procedure? What, please, what are you saying?

I'm sorry thornyrose, I don't know what to say. I was just reading about plavix and I thought those links might be helpful.

From what ladygazelle said, it doesn't seem Siskin is too into CCSVI.

Strange how Siskin would be planning a randomized double blind placebo CCSVI trial then, isn't it?

Maybe he wants to find out if "Liberation" has any merit, as it seems even though he has performed the procedure on enough patients that he's still not convinced.

And I'm all for RCT's, and have been all for RCT's for "Liberation" for about a year now, or at least since I started to get skeptical.

He has already started his trial.

How does concerned know what Dr. Siskin (can we please call him by his title - I'm quite certain he earned it) thinks?

He doesn't ... and he's proving more and more he doesn't know much.

He just wants to spread dis-information about CCSVI

I didn't say I know how he thinks, hence the maybe.

From that blog post however, it does seem that he's rather skeptical.

concerned, I read it differently, I think Dr. Siskin was keeping the focus on the vascular malformations which are structural and treatable and not the refux which is flow and not directly treated (the direct treatment is to the structural outflow obstruction).

One of Dr. Siskin's gifts to us has been his continuing effort to keep patient expectations in line. One third, one third, one third. And here it was LadyGazelle with everything she was hoping for from the treatment and Dr. Siskin steering the focus back to what he could do, which was treat the structural malformations (although perhaps not the inverse valves?).

There has been some criticism that Dr. Siskin's office is moving people through too fast, I hear that in LadyGazelle's report too. I know with MS a slower pace and a chance to go over what's been done more thoroughly, even if it takes repeating, might make for a less anxious experience.

I also think Dr. Siskin's office, by virtue of being our first one out of the gates to be openly treating CCSVI last June, has gotten the greatest scrutiny. By-and-large, they've held up.

I thought the problem was reflux, that's what Zamboni thinks causes MS, right?

^ Have you actually read any of Dr. Zamboni's interviews/works?

Why don't you ask Dr. Sclafani who went and personally trained with him ... valves, webs, and stenosis ...

Please read the CCSVI alliance website as well while you're at it. Take a few days off from this site, read up, and then come back and we can discuss properly.

more confusion tactics and questions that have already been answered ...

maybe you should change your screen name to "confusor" or "confused" or something instead.

concerned, don't you think you should be researching other treatments for your poor mother rather than spending al your time battling ccsvi? jeez, you'd think you would have something posivitve to do rather than working on negatives.

Please try to stay on topic.

The Origin and History of CCSVI

A Basic Definition

CCSVI stands for “Chronic Cerebrospinal Venous Insufficiency,” a condition where people have obstructed blood flow in the veins that drain the central nervous system (the brain and spinal cord). Research indicates that CCSVI is significantly correlated with multiple sclerosis.1, 2,3,4

As a result of these venous abnormalities, the blood flow rate through the central nervous system back toward the heart may become slowed, and blood may reflux back toward the brain and spine.1

People with CCSVI have one or more of the following blockages of the veins that drain blood from the central nervous system:

Stenosis is an abnormal narrowing of the veins that restricts blood flow. Types of stenoses include the collapse of the vein, twisting of the vein, ring-like narrowings in the vein, and other similar obstructions
An abnormal valve, septum, flap, or membrane that blocks or inhibits blood flow through the veins
Atresia, hypoplasia, or agenesis are severe venous problems, including veins that are partially closed, underdeveloped, minimally formed, or almost entirely missing
The animation below shows how stenosis in veins draining the central nervous system can cause CCSVI. This animation was provided by Dr. Zamboni.


From the CCSVI alliance webpage (pardon my liberties taken)

Stenosis is causing reflux ... I'm pretty sure Dr. Siskin didn't go into his office workers veins to see if they had stenosis. I have reflux, you have reflux. It's what happens in the milli-seconds that the heart isn't pumping ... the blood stops when it hits a valve (think IJVs) ... and bounces back for that milli-second. It happens.

When it's constant though due to the above mentioned stenosis ... that's when it's a problem.

Please try to follow along ...

Happy birthday concerned!