This Is MS Multiple Sclerosis Community: Knowledge & Support

[thornyrose76]

What blood thinner did
Dr. Siskin prescribe, Plavix? What pharmacy filled your prescription? I'm Canadian and any info would be helpful COST?

[Peaches1]

From what I was given by Dr Siskin, it was only Plavix. As a result I ended up with a clot. From my understanding, he doesn't use blood thinners only Plavix, which is a shame.
Dr Dake is very aggressive with blood thinners when a patient gets a stent like myself
Good Luck with everything

[blossom]

peaches1, were you able to get the clot problem resolved? i hope you are. how long after treatment did you clot? they suggested plavix for 3 mo. with me i had no stents.

[brave]

Dr Siskin has given me Aspirin 325 mg once a day for 6 months, it's over the counter in US

brave

[pklittle]

I had venoplasty with Dr. Siskin. No blood thinners prescribed. I am presently in a situation now with my left internal jug 100% blocked due to clotting. I am not saying plavix would have prevented this.. I have no idea. Just posting to let folks know this is a possibility.

[newveins]

People clot with or without using blood thinners and anticoagulants. Doctors are all over the place with them for the simple reason there is no science to back up their use unless a patient has a history of clotting problems. Of course, one can try blaming the lack of thinners and anticoagulants if one gets a clot but fact is there are all kinds of reasons this can happen like an inappropriate stent, perhaps too small, a stent that moved slightly, a stent is a foreign body some people may be prone to "overdo" the healing after the tearing just like some people tend to build more scar tissue after surgery, lack of exercise, added injury during sleep or in general etc etc. We just don't know.

[Cece]

We just don't know.

Newveins, great points. And it seems like we could throw this statement ("we just don't know") after everything we say when it comes to CCSVI. It's been a year and a half since this procedure was first done in the U.S., how long until they do know? And who else is going to end up with these very important veins permanently clotted over?

[thornyrose76]

I had venoplasty with Dr. Siskin. No blood thinners prescribed. I am presently in a situation now with my left internal jug 100% blocked due to clotting. I am not saying plavix would have prevented this.. I have no idea. Just posting to let folks know this is a possibility.

Do you have stents?

[pklittle]

I had venoplasty with Dr. Siskin. No blood thinners prescribed. I am presently in a situation now with my left internal jug 100% blocked due to clotting. I am not saying plavix would have prevented this.. I have no idea. Just posting to let folks know this is a possibility.

Do you have stents?

no, venoplasty only

[thornyrose76]

From what I was given by Dr Siskin, it was only Plavix. As a result I ended up with a clot. From my understanding, he doesn't use blood thinners only Plavix, which is a shame.
Dr Dake is very aggressive with blood thinners when a patient gets a stent like myself
Good Luck with everything

How is Dake aggressive with blood thinners? How is he different than Siskin?

[NHE]

People clot with or without using blood thinners and anticoagulants. Doctors are all over the place with them for the simple reason there is no science to back up their use unless a patient has a history of clotting problems. Of course, one can try blaming the lack of thinners and anticoagulants if one gets a clot but fact is there are all kinds of reasons this can happen like an inappropriate stent, perhaps too small, a stent that moved slightly, a stent is a foreign body some people may be prone to "overdo" the healing after the tearing just like some people tend to build more scar tissue after surgery, lack of exercise, added injury during sleep or in general etc etc. We just don't know.

I'm not certain that I can agree with this statement. Dr. Sclafani has stated that angioplasty injures the vein wall and makes the vein much more prone to clotting.

NHE

[nagsy]

I had venoplasty with Dr. Siskin. No blood thinners prescribed. I am presently in a situation now with my left internal jug 100% blocked due to clotting. I am not saying plavix would have prevented this.. I have no idea. Just posting to let folks know this is a possibility.

How long before you knew you had clotting? How was this determined?

Did all your symptoms re-appear suddenly or was onset slow?

Cheers,

Pinda

[Cece]

Here's the thread Pam started, it's a valuable one here:
http://www.thisisms.com/ftopict-12342.html

[magoo]

People clot with or without using blood thinners and anticoagulants. Doctors are all over the place with them for the simple reason there is no science to back up their use unless a patient has a history of clotting problems. Of course, one can try blaming the lack of thinners and anticoagulants if one gets a clot but fact is there are all kinds of reasons this can happen like an inappropriate stent, perhaps too small, a stent that moved slightly, a stent is a foreign body some people may be prone to "overdo" the healing after the tearing just like some people tend to build more scar tissue after surgery, lack of exercise, added injury during sleep or in general etc etc. We just don't know.

I'm not certain that I can agree with this statement. Dr. Sclafani has stated that angioplasty injures the vein wall and makes the vein much more prone to clotting.

NHE

I have to agree with NHE. It seems reasonable that after any manipulation of the veins that a blood thinning program should be advised. The body will clot over an injury.
I feel terrible for PKlittle. She will hopefully share more about how Dr. Siskin dealt with her problems. It is a cautionary tale.
There is a problem when a doctor is not readily available to address concerns or issues after treatment. This is not something we can do once and walk away. We need to be monitored closely.
The medications I took after treatment with Dr. Dake were an Aspirin, Coumadin and Plavix. I also had stents. He is still available at a moments notice by email for any questions or concerns I have. I went to see him 2 months after treatment and a year after for check-ups. I will see him every year from here on out. Good follow-up care is essential because we are all learning about CCSVI and it is ever changing at this time.

[Cece]

There is a problem when a doctor is not readily available to address concerns or issues after treatment.

I agree with this 100%. We've seen a big difference from doctor to doctor in this too.