CaptBoo wrote:It's been two months since venous angioplasty in Atlanta. The major news is that I can say without doubt that nothing has gotten worse. I have the energy I had five years ago. My walking is much better most of the time, until I get tired, then the foot starts to drop. I can again walk in near darkness. I had totally lost that ability. My balance is better. I think it's all getting better very, very slowly. But if you're concerned, that's not a scientific double blinded study. It is me and in this case that's all I care about.
CaptBoo wrote:CCSVIhusband. You are not concerned. He has yet to weigh in on my positive anecdotal evidence of the efficacy of venous angioplasty in relieving symptoms commonly called MS. Perhaps he will spare me his venom.
scorpion wrote:CaptBoo wrote:CCSVIhusband. You are not concerned. He has yet to weigh in on my positive anecdotal evidence of the efficacy of venous angioplasty in relieving symptoms commonly called MS. Perhaps he will spare me his venom.
It is not that we do not believe people's anecdotal evidence but that we simply question how much of people's "improvements" are the result of the placebo effect. That said I am happy you have found some relief from some of your symptoms.
HFogerty wrote:For the record, my anecdotal evidence would be no more restless legs (diagnosed since 2008 and on medication daily for same) or need for medication since my procedure, everyday tremor in my hands gone, fatigue gone and urinary incontence gone (among other improvements). Treated a little over a month and a half ago. If that is the anecdotal evidence that does not stand up to other people's "scientific" standards, so be it. Call me anecdotal! I did not realize the placebo effect would last over a month and a half - silly me - what was I thinking!
HFogerty wrote:I don't see how the placebo effect would literally stop the approximatley 500+ periodic leg movements nightly (documented on my sleep study) when I am unconscious. I know for a fact that they are gone. I am very well educated and know what the placebo effect is and is not. No need for directing me.
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