Lyon wrote:What you and most people are ignoring is the possibility that EVERYONE, or nearly everyone, in the developed world might have venous stenosis. If everyone has it, is it so surprising to find that nearly everyone with MS being tested for CCSVI finds that they have it?Cece wrote:What is convincing to me is that we can have confidence, if we have MS, that when we get seen for CCSVI, we will be found to have CCSVI. There are many reputable doctors finding the CCSVI; it's a real observable phenomenon. It's highly associated with MS to a near one:one ratio based on the reports of everyone here and the scarcity of reports of people going in for CCVSI diagnostics who are found not to have it.
Until it's shown via venous catheter that a significant number of the general public DON'T share this in common with MS'ers, confidence in any of this is strictly voluntary.
Lyon wrote:Thanks Cece. I honestly appreciate the sentiments but I'm in the midst of trying to come to terms with myself whether a skeptic outlook in this environment is doing any more than dashing some people's hopes and pissing other people off.Cece wrote:Good to see you back, Lyon.
For now and for the most part lurking seems to be the most comfortable option
Lyon wrote:I remember. He's said similar things a couple of times. I suppose your point is that with one Doctor's opinion we can forgo the cost and efforts clinical trials entail?Cece wrote:I have confidence in Dr. Sclafani who says that this is not something he has seen in nonMSers.
He said this in response to you, in fact:
Good to see you back, Lyon.
All these guys are smart doctors (a lot smarter than us commonfolk that debate here)
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