While we have the privilege of debating minutae

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

While we have the privilege of debating minutae

Postby CureIous » Tue Nov 30, 2010 3:25 pm

Multiple sclerosis sufferer took his own life while on holiday.
<shortened url>

While it would admittedly be pure speculation, one can't help but wonder, if only some had heard there is a hope on the horizon, even a faint glimmer of light can overcome the deepest darkest tunnel.

Take note of his chief complaint and ponder. Heartbreaking, even more so ironic given his location.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby CureIous » Tue Nov 30, 2010 5:26 pm

after another read, note this:

"and was administering injections of a drug known as “copaxone” to help control the symptoms."

Wherever did he get the idea that a disease modification drug/progression drug would alleviate symptoms? My neuro never said a thing about the symptoms other than to avoid the heat.

Why do some neuros not just speak the truth plainly?
"I know your MS symptoms suck, big time, and you feel like crap, continue taking the shots regardless of how you feel, because those are to help mitigate inflammation/neurological damage, which can be happening whether you feel badly or not".

Mystified.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Cece » Tue Nov 30, 2010 6:21 pm

It's tragic and yes I imagine that family is in for more pain in the next few years if CCSVI breaks big. All the what-ifs.
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Postby blossom » Wed Dec 01, 2010 1:59 am

it's hard to touch on this. but, it is sadly a reality that i'd venture to say some here at tims have thought about doing this or have this kinda plan if things just get to a certain point. i have to admit i've had my thoughts.

but, thoughts are thoughts-carrying them out are a whole different ballgame. there is no coming back to change things. "it is final".

nobody can judge or know what any individual or their family is going through even though we all have ms each one of us owns our pain. nobody else does.

look at barb farrel, and some of the others. right now there is more real hope than there has ever been. will it be a reality for everyone of us-who knows? i sure hope. but, where there is life there is hope.

i just hope this guy is at peace in a better place and his family finds peace. my heart is very sad for him and his family.
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Postby BooBear » Wed Dec 01, 2010 2:45 pm

There is a reason that MS sufferers are more likely to take their own lives than the general population. Doesn't help when we are prescribed medications that include depression and suicide as possible risk factors and adverse reactions.

My heart goes out to this patient and their family.
Three veins angioplastied.  One renewed life.  
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