This Is MS Multiple Sclerosis Community: Knowledge & Support

LadyGazelle, I hope that is ok to quote?

Concerned, I am curious about this statement too, although I wouldn't jump to any nefarious conclusions off of it.

Has anyone else heard this from Dr. Siskin, that he's tested people in his office and found reflux? Was it the same sort of reflux (CCSVI reflux as opposed to Doepp reflux)? Was it that he found one of the Zamboni doppler criteria, which has been found in healthy people, instead of the two or more criteria that are found in people with CCSVI?

Cece, have you been able to verify what is said about Dr. Siskin?

No, I don't doubt LadyGazelle, I believe he said this to her, but I don't know what he meant by it entirely.

I did not learn about CCSVI on this board. I ran across the concept by chance in January of this year. I started researching the concept at that point and read everything I could get my hands on. By the time I joined this board, I had already made up my mind to get the procedure done.

I was liberated on August 13 in Albany. I have felt wonderful since; my recent new symptom (leg numbness) lasted just a few days and is nearly back to normal- nothing like what I would have experienced prior to the procedure.

Are medical tourism companies and the like cashing in? Of course. I would argue the same exists on the non-CCSVI treatment side as well. That is why it is so important that we educate ourselves and act with calm despite our desperation. It is also why it is so important to get more research done; if this treatment is what many of us believe it to be, then we need it to be more mainstream. That will only happen with more research.

Please don't let anything other than your own thoughts drive your decision one way or another.

_________________
Three veins angioplastied.  One renewed life.  

It's funny how once you've had a loved one that has been liberated, you can see through comments made but "so called" skeptics. I feel liberated from the misleading media, from my mothers negative doctor, from the empty feeling I got from having no answers. Most of all I feel liberated from the grim reality that this was most likely going to be the year that my mother was to pass on from this world with the answers all stuffed into a little box our doctor calls ms.

Amen guy (or girl) ... great post!

yeah, solney, I like that post, reminds me what this is all about.

It's real ... the results you see on YouTube and hear stories about ... they're real too. Not in everyone ... but if you have a great doctor who knows what to do and where to look and you have something treatable ... some amazing things can happen. I'm not asking for a lot ... just that this CCSVI stuff is legit - and everyone with personal experience with it says so ...

What Cece said is exactly right ...

CCSVI may turn out to be true, but I'd need a lot more to go on than just some videos on youtube.

I'll admit that "this CCSVI stuff is legit" if it is ever proven to be legit, but as it stands, and many CCSVI docs are saying the same thing, the evidence just isn't there.

Like I said ... we both put it out there for everyone to see where we stand ... and now you know.

I have personal experience with CCSVI (my wife who has MS was liberated in June prior to her MS diagnosis - and got the results I've discussed in the past. She says CCSVI liberation alleviated a lot of her symptoms - and that's all that matters to me).

There are hundreds of other stories just like hers (and many from people with MS a lot longer than her, and doctors who talk about CCSVI - neurologists, GPs, IRs, Vascular Surgeons, Cardiologists ...

CCSVI WILL be proven ... ... I know it, and I suspect you know it.

hey, let's not argue, it's concerned's birthday....

that was like 3 days ago ... we're allowed to debate again.

Argumentum ad hominem is a form of logical fallacy and has no place in a debate.