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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby concerned » Tue Nov 30, 2010 9:01 pm

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Postby Cece » Tue Nov 30, 2010 10:04 pm

After [Dr. Siskin] said this ten times, I finally said, I just want my internal jugular valves fixed to eliminate reflux and he said, "There is no "fix" for the valves and all his staff showed reflux with the doppler and none have MS symptoms."

LadyGazelle, I hope that is ok to quote?

Concerned, I am curious about this statement too, although I wouldn't jump to any nefarious conclusions off of it. :wink:
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Postby Cece » Wed Dec 01, 2010 8:58 am

Has anyone else heard this from Dr. Siskin, that he's tested people in his office and found reflux? Was it the same sort of reflux (CCSVI reflux as opposed to Doepp reflux)? Was it that he found one of the Zamboni doppler criteria, which has been found in healthy people, instead of the two or more criteria that are found in people with CCSVI?
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Postby HappyPoet » Wed Dec 01, 2010 12:20 pm

Cece, have you been able to verify what is said about Dr. Siskin?
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Postby Cece » Wed Dec 01, 2010 1:39 pm

HappyPoet wrote:Cece, have you been able to verify what is said about Dr. Siskin?

No, I don't doubt LadyGazelle, I believe he said this to her, but I don't know what he meant by it entirely.
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Postby BooBear » Thu Dec 02, 2010 6:26 am

I did not learn about CCSVI on this board. I ran across the concept by chance in January of this year. I started researching the concept at that point and read everything I could get my hands on. By the time I joined this board, I had already made up my mind to get the procedure done.

I was liberated on August 13 in Albany. I have felt wonderful since; my recent new symptom (leg numbness) lasted just a few days and is nearly back to normal- nothing like what I would have experienced prior to the procedure.

Are medical tourism companies and the like cashing in? Of course. I would argue the same exists on the non-CCSVI treatment side as well. That is why it is so important that we educate ourselves and act with calm despite our desperation. It is also why it is so important to get more research done; if this treatment is what many of us believe it to be, then we need it to be more mainstream. That will only happen with more research.

Please don't let anything other than your own thoughts drive your decision one way or another.
Three veins angioplastied.  One renewed life.  
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Postby solney » Thu Dec 02, 2010 11:12 am

It's funny how once you've had a loved one that has been liberated, you can see through comments made but "so called" skeptics. I feel liberated from the misleading media, from my mothers negative doctor, from the empty feeling I got from having no answers. Most of all I feel liberated from the grim reality that this was most likely going to be the year that my mother was to pass on from this world with the answers all stuffed into a little box our doctor calls ms.
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Postby CCSVIhusband » Thu Dec 02, 2010 11:18 am

Amen guy (or girl) ... great post!
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Postby Cece » Thu Dec 02, 2010 11:37 am

yeah, solney, I like that post, reminds me what this is all about.
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Postby CCSVIhusband » Sat Dec 04, 2010 8:19 pm

It's real ... the results you see on YouTube and hear stories about ... they're real too. Not in everyone ... but if you have a great doctor who knows what to do and where to look and you have something treatable ... some amazing things can happen. I'm not asking for a lot ... just that this CCSVI stuff is legit - and everyone with personal experience with it says so ...

What Cece said is exactly right ...
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Postby concerned » Sat Dec 04, 2010 8:26 pm

CCSVI may turn out to be true, but I'd need a lot more to go on than just some videos on youtube.

I'll admit that "this CCSVI stuff is legit" if it is ever proven to be legit, but as it stands, and many CCSVI docs are saying the same thing, the evidence just isn't there.
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Postby CCSVIhusband » Sat Dec 04, 2010 8:34 pm

Like I said ... we both put it out there for everyone to see where we stand ... and now you know.

I have personal experience with CCSVI (my wife who has MS was liberated in June prior to her MS diagnosis - and got the results I've discussed in the past. She says CCSVI liberation alleviated a lot of her symptoms - and that's all that matters to me).

There are hundreds of other stories just like hers (and many from people with MS a lot longer than her, and doctors who talk about CCSVI - neurologists, GPs, IRs, Vascular Surgeons, Cardiologists ...

CCSVI WILL be proven ... :D ... I know it, and I suspect you know it.
Last edited by CCSVIhusband on Sat Dec 04, 2010 8:36 pm, edited 1 time in total.
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Postby Cece » Sat Dec 04, 2010 8:36 pm

hey, let's not argue, it's concerned's birthday.... :wink:
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Postby CCSVIhusband » Sat Dec 04, 2010 8:37 pm

that was like 3 days ago ... we're allowed to debate again.
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Postby concerned » Sat Dec 04, 2010 8:51 pm

CCSVIhusband wrote:that was like 3 days ago ... we're allowed to debate again.


Argumentum ad hominem is a form of logical fallacy and has no place in a debate.
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