ThisIsMA wrote:Nigel said:Wow Nigel, Interesting perspective but I can't agree with you. I'm one of those people who can't afford CCSVI and I'm hanging my hopes on the fact that small studies have shown that there are fewer new lesions and dramatically fewer relapses in people who take high dose vitamin D. That's nothing like a "bit player" to me. And there's no comparison with respect to the side affects profile of vitamin D versus the side affects profile of the injectible and oral prescription drugs.I think we are looking at a bit player in the picture of health by singling out Vit D levels. Nigel
Vitamin D is my personal hero in my struggle to save my life. I take it very very seriously. I've read the small studies that show its effective. I hope for larger studies, but I'm not holding my breath given that there's no financial incentive to prove that Vitamin D works for MS and a HUGE financial incentive to prove it doesn't work.
I've read the recent study that found that MS interferon injectibles raise vitamin D levels and only are effective in people whose vitamin D levels are raised significantly. What the heck is that about? I'd much rather take the natural, inexpensive and multi-talented (for lack of a better word) over the counter D3 than inject myself daily (or weekly) with a prescription drug. But that's just my choice..........Just my opinion (and I hope I'm right!)
Disclaimer: I am not a health care professional. Please do your own research and consult the health care professionals of your choice before making your own independent decisions about your health.
I am sorry that you are not able to get de-stenosis for CCSVI syndrome. There are many next steps for someone in your position. After getting your D3 level above 125nmol/L, I suggest you adopt the vein health program given by Cheerleader.
Have you tried removing possible inflammatory agents from your diet? The numerous diets are worth looking at and trying to see if lactose, gluten etc are an irritant for you. Also do not rule out interferon completely. Interferon seems to work for about 1 in 3 pwMS but there is no test to see if you are one in three or two in three.
Taking the first step with D3 is important. Thanks for you support on this thread.