Cardiologist Dr. Barry Katzen on CCSVI Alliance

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Cardiologist Dr. Barry Katzen on CCSVI Alliance

Postby cheerleader » Wed Dec 01, 2010 8:35 am

and patient advocacy. In a professional editorial for other cardiologists-


It’s easy to dismiss patient advocates as naïve and unwilling to consider the risks and lack of scientific proof of the validity of a therapy. Let’s not forget, however, patient advocacy can be an extremely important contributor to the advancement of medicine.

Smart, educated advocates have formed CCSVI Alliance, a 501(c)(3) not-for-profit organization that includes a scientific advisory board.


link
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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an error

Postby Rosegirl » Wed Dec 01, 2010 2:19 pm

The article claims that the CCSVI venogram will not be covered by insurance. While each patient should check with his insurer before treatment, many of us have been covered by insurance and been charged a relatively low co-pay.

There was confusion earlier when people tried to bill this as an MS-related procecure. It should be coded as treatment for a vascular problem, and viewed that way, it is a standard procedure.
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Re: an error

Postby cheerleader » Wed Dec 01, 2010 2:23 pm

Rosegirl wrote:The article claims that the CCSVI venogram will not be covered by insurance. While each patient should check with his insurer before treatment, many of us have been covered by insurance and been charged a relatively low co-pay.

There was confusion earlier when people tried to bill this as an MS-related procecure. It should be coded as treatment for a vascular problem, and viewed that way, it is a standard procedure.


that's right, rosegirl. Central venous stenosis is a known disease and testing and treatment are covered. I believe Dr. Katzen was referring to CCSVI in MS---which doesn't have codes or medical validation at this point.
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby TMrox » Wed Dec 01, 2010 5:05 pm

true, my insurance paid for my CCSVI treatment and I was treated abroad.

I think things might be easier with insurance if treated in proper hospitals and not in tourism clinics.

***Edit:
Bump, I found this today in one of Cece's post...not much promise with some insurers

Medicare has sent a letter to Dr. Mehta's group in Albany that clearly denies coverage for CCSVI testing and treatment. The letter is here:
http://www.thisisms.com/ftopicp-145010.html#145010
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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