migrating stent check up news

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

migrating stent check up news

Postby Nasti » Thu Dec 02, 2010 11:08 am

So I went to Bulgaria to see what was the relapse all about, but first...
My local doc told me that my left jug was 3 mm and my right jug (stented) was 1 mm.
So I started 'imagining' migrating stent and clotted stent, but...
Dr. Grozdinski today saw that I have a perfect blood flow in my jugs, right 5.9 mm, left 4.8mm, even more than my last check-up in Sept.
So...
The reasons for my last relapse 1 month ago are unknown. Autoimmune, stress(?), x, y, z,... I think I knew this right after the surgery (when I was in a relapse and nothing sorted out right away like in some cases), but I've chosen to ignore it lately. I guess MS works in mysterious ways :)
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Postby CureIous » Thu Dec 02, 2010 11:30 am

Excellent news. Thank you for the followup.
Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby CureIous » Thu Dec 02, 2010 11:31 am

Excellent news. Thank you for the followup.
Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby blossom » Fri Dec 03, 2010 2:24 pm

even though we have to hear the good as well as the bad, it is always more uplifting to hear good news.

i'm so glad you got good news.
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Postby Nasti » Fri Dec 03, 2010 2:34 pm

Well yes, it's good news, but bad at the same time. If it was a clotted stent or something else was the reason for the relapse, maybe it could have been repaired. Just as in the beginning, when I wanted to have a stenosis because it is fixable.
So I am still right where I started, relapses will go on to happen. However, the fatigue relief is one thing I gained, and that is enough, at least for now.
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Postby Cece » Fri Dec 03, 2010 2:42 pm

If iron deposition has played a role in relapses, I don't imagine that all the iron will be instantly out of the brain as soon as CCSVI is fixed, but that the body would clear it out over time. To me that is a hopeful thing, even in someone who has a post-venoplasty relapse, because if the flow is good than there won't be any more iron being deposited or neurons dying from lack of oxygen or glucose.

Hang in there, Nasti, and keep us updated. I'm assuming that the doc who gave you the first ultrasound that showed it narrowed was not an experienced doc at this? And you trust Dr. Grozdinski's assessment?
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Postby fernando » Sat Dec 04, 2010 7:46 am

Cece,

I tend to think among the same lines as you. Maybe some of us has enough nasty stuff in our brains that continues to harm after intervention.
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Postby fernando » Sat Dec 04, 2010 7:49 am

Cureious,

Is that you in the middle of the two cute little girls? I imagined you a little taller. :lol:

Beautiful children, congratulations!
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Postby Nasti » Sat Dec 04, 2010 8:08 am

Well hope dies last :). I think that might be the case, but it'll take time to see what's the case. At my last MRI in April the report said "numerous plaques", so sometimes I think that simple overheating of the brain or physical strains which would demand for more complex brain pathways may cause congestion at some points, and a due relapse. Just as traffic congestion. But, since nobody knows, and especially not me, I realize that from time to time my imagination blossoms. :)
Yes, the local doc is a great one, but inexperienced with this problematics, and I trust Dr. Grozdinski's judgment, he's experienced enough and he knows what's he talking about. Of course, concerning evaluation of the real size of the veins and obstruction sites, venography is most eligible. I had a very narrow place (.2) at ear height of my right jug, but this was seen only at venography.
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