This Is MS Multiple Sclerosis Community: Knowledge & Support

I have to verify what my MN doctor means by "Feel free to share our contact info" (now verified - it is ok to post and discuss!) This is the MN doctor who recently tested me via doppler ultrasound and full Haacke protocol MRV for CCSVI. He has hospital admin approval to offer the procedure. This will be beginning in mid-January.

He seems excited to be getting into CCSVI. He traveled in October all the way to Glasglow for the CCSVI conference that took place there with Dr. Simka, Dr. Gilhooly, Dr. Haacke, and other notables.

edited with new contact info as of April 2013

New contact info

Michael Cumming, MD, MBA, FRCPC
Director Vascular Services
Center for Diagnostic Imaging
5775 Wayzata Blvd, Ste 190
St. Louis Park, MN 55416

Front Office 952-738-4386

http://www.cdivascular.com

Cece,
I heard from this Dr. also & he said feel free to share info. I questioned the Cash only as I was treated by him & am waiting for Medicare to respond. He emailed back & said cash only would be for uninsured & out of country. They will accept insurance. Of course, if insurance will pay.Wonderful & caring Doctor. Hopes to be ready mid January.

nellie, do you think he meant we could post it publicly?

To clarify because someone asked, I've already set up an appointment with Dr. Sclafani so chose not to be treated by the MN doc. If I hadn't had that appointment, I would have been comfortable going with the MN doc but would have set the appointment date a bit in the future to give him time to get past the learning curve if he has one. 'Course now I'm frightened that I'll wait too long and insurance won't pay, but that's a different thread.

I should add that this is indeed the doc who is the 'yellow dot' in the Hubbard registry map.

His wording to me was feel free to share the contact inormation. He gave me the contact phone # & the email contact but I didn't know whether to post it either. He must be anticipating calls as I called the # & got a recording to leave my info.
I am so afraid of the info. I've been reading about ins. What was your take on Dr. Sclafani's comments to your question?

I was encouraged. I think Dr. Sclafani is right. But I also think right doesn't always win.

Thanks Cece!

I would like to be treated close to home and for me that''s Minneapolis, but I'm on the waiting list for Siskin some time late winter, early spring. But Cece you raised a good point about learning curve, he has only treated a few MS patients so given that he has only treated a few is that something I should be concerned about? But then again he has good crredentials, etc....

I'm referring mto this new doc in Minneapolis...need advice here, anyone?

(sent you a pm, thornyrose)

I have official permission from the doctor to share his name and contact info:


Dr. Cumming is planning to treat CCSVI patients two days a week.

Hi all,

Just joined the forum today.

I want to confirm that we are seeing and treating patients.

As of Dec 23, we have treated 11 patients. All procedures have gone well. Our short term followup is similar to what others are reporting, ie about 1/3 have good improvement, 1/3 modest improvement and 1/3 no improvement.

We are working on joining Hubbard's registry.

Best of the season!

Michael Cumming, MD, FRCPC, MBA

Welcome to the forum, Dr. Cumming, what a surprise!

It is great to hear that the eleven procedures so far have gone well. When I was tested by MRV, I was number four, and at that time every one of us had shown CCSVI. Have those odds held up, are you seeing CCSVI in every MS patient who comes in?

Last winter when I first looked into this, it was that alone that was very intriguing and convincing: with very few exceptions, how could every last one of us be showing up with the predicted jugular and azygous malformations....

Btw, if I say that you know me as "Jeff's wife," my identity is revealed?

This is great news, both that another US doctor is doing the procedure and that you're joining the forum.

Welcome Dr. Cumming. I was treated by you & have written about you here before stating how profeesional & caring you are. I'm so happy we have a Dr. here in Minnesota onboard.

This is exciting, Dr Cumming! I am in Michigan's U.P. and will need follow-up care at 1,3,6,9 & 12 mos. I was initially treated by Dr Siskin in August, have an appt with Dr Sclafani the end of January (I believe I've restenosed) and have not been successful in finding follow-up care locally (meaning within a day's drive). Would you be willing to provide follow-up care?

welcome Dr Cumming