Taiwan's recruiting controls for CCSVI trial

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Taiwan's recruiting controls for CCSVI trial

Postby Algis » Fri Dec 03, 2010 4:20 am

http://multiplesclerosis-beta2kimo.blogspot.com/

The Veteran General Hospital of Taipei (Tien Mu)
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Postby TMrox » Fri Dec 03, 2010 4:57 am

Dec 2 , 2010 Central nervous system abnormalities and venous circulation of multiple sclerosis association officially kicked off in Taiwan. Venous circulation anomalies of central nervous control experiment will start Control member recruit.

Abroad since the end of 2009 by the Italian physician Paolo Zamboni in multiple sclerosis patients by ultrasound, magnetic resonance imaging and angiography after the inspection found that: there are over ninety percent of patients have venous narrowing phenomenon, in particular, is the internal jugular vein, both part of the thoracic veins, abnormal narrowing of the vein causes blood flow to part of the brain and spinal cord can not be properly discharged, suspected to be due to this issue makes the further production of inflammatory central nervous system reactions. And in the mature balloon assisted surgery, so surgery patients to accept the symptoms improved and response. This is a new discovery, and many patients responded well, many countries have begun such studies.

To domestic patients an exciting news, is currently before the Taipei Veterans General Hospital MS patients for domestic ultrasound and MRI scans done, the preliminary findings and abroad, not far from the case, it is also prepared to launch a formal experiment, but for seek correctness, so it is necessary to seek the control group (healthy individuals) to do ultrasound and magnetic resonance imaging (including contrast test).

Please, following conditions:
1. Aged 20 to 40 years old good (or 15 ~ 45 years)
2. There is no high blood pressure, a history of depression or anxiety disorder
3. There is no history of heart disease (including left ventricular hypertrophy, coronary artery disease ... so who)
4. There is no history of diabetes
5. Without kidney-related diseases or renal dysfunction
6. There is no history of migraine
7. There is no history of stroke (including the size of the stroke, the eyes of the wind, ears stroke)
8. No other significant injuries were
9. There is no history of central nervous system injury (spinal cord inflammation, meningitis ..... etc.)
10. Normal vision (sudden blindness can not have a history or symptoms or invisible)

Also the object of raising patients and their own best distantly related by blood (to rule out genetic factors, it is not recommended for patients involved in their children's parents and brothers and sisters)

So patient's friends to care about your friends, play your little love, or put this as a health check (this is definitely not the general health check health check will be able to do is to belong to high-level detection of brain blood vessels, Through this test will be whether that narrowing of your arteries veins and whether the crisis of stroke ...), a rare achievement to eliminate disease, multiple sclerosis.

Please help push those who wish to participate in the control check

Please call :02 -28,757,583 Or

Email: wysheng@vghtpe.gov.tw Miss Sheng

Info translated with the often unreliable google translator.

Thanks Algis for sharing the news:
http://multiplesclerosis-beta2kimo.blogspot.com/
Last edited by TMrox on Fri Dec 03, 2010 10:07 am, edited 2 times in total.
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby thisisalex » Fri Dec 03, 2010 5:42 am

hi

is it a diagnosis only trial? or are they doing the procedure itself?

alex
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Postby TMrox » Fri Dec 03, 2010 6:12 am

My understanding from the google translation is that the trial is just diagnosing CCSVI and seeing the prevelance of CCSVI among health controls as well

"To domestic patients an exciting news, is currently before the Taipei Veterans General Hospital MS patients for domestic ultrasound and MRI scans done, the preliminary findings and abroad, not far from the case, it is also prepared to launch a formal experiment, but for seek correctness, so it is necessary to seek the control group (healthy individuals) to do ultrasound and magnetic resonance imaging (including contrast test). "
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby Algis » Fri Dec 03, 2010 7:21 am

I know of 8 reported treated MS patients by CCSVI's Zamboni procedure. I have no further detail. Improvements range from slight to significant; for what it means.

That will be a trial for screening and treating, according to what is said.

More as it come to me, fingers crossed :)
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Postby TMrox » Fri Dec 03, 2010 7:44 am

Algis, from the article you posted do you get that the trial will also involve treating? That will be awesome.

From the usually bad google translation I understand that the trial will involve diagnositic only.

The 8 cases that you mentioned, have they been treated within this clinical trial or is it a separate study?

Rox
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby Algis » Fri Dec 03, 2010 7:56 am

Those 8 cases were outside the study; and actually the research of Dr.xxxx (I don't have permissions, sorry, PM if you like) who published several papers about venous insufficiency and nervous disorders.

ADDED:

As an explanation; it turns out that Dr.xxxx and Dr.Zamboni's work have a lot in common; therefore the study.
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Postby TMrox » Fri Dec 03, 2010 8:29 am

Cool, many thanks Algis.
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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