This Is MS Multiple Sclerosis Community: Knowledge & Support

Hopeful2 - thanks so much for sharing about Brooklyn! I do appreciate knowing as much as possible prior to going (am just a bit of a control freak!). I'll stay away from Thai Sky and probably frequent Brooklyn Bread often And your suggestion of preparing meals beforehand for the first few days after I return home is something I hadn't thought about.

I wish you continued healing - keep us posted. I had improvements from angio #1 that I'd like to get back. And I can't wait to meet Dr Sclafani & Holly!

for those who can afford it, i receommend having dinner at the River Cafe at 5pm the night before the treatment. The most romantic place in the universe. brooklyn bridge to the right, statue of liberty to the left, ferries on the river and the skyline, oh the skyline!

I originally wanted to see Dr Sclafani in Brookly but an thinking of changing it to Dr Domenico in Phila as it's closer to home. Does anyone know anything about him?

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Laura Ayn Lewars<br />Herbalist, Natuopath<br /><br />dx'd 16 years ago and still working 

http://www.americanaccesscare.com/ourdo ... enico.html

I don't know anything more about him but Dr. Sclafani has worked with the AAC doctors to share his knowledge of CCSVI.

Just noticed that there's a CCSVI page up at American Access Care now:
http://www.americanaccesscare.com/ccsvi.html

It has the registration form pdf at the bottom. There is also the statement that after you send in the form to ccsvi@aac-llc.com you will be contacted by a ccsvi clinical coordinator within 24 - 48 hours. Not sure if that is possible just yet!

So Holly, did my insurance clear todaaaay?

I'll see (CeCe) your AAC links and raise you one CeCe...look at this American Access Care CCSVI page. It notes full site coming soon:

http://www.ccsvicare.com/ccsvi.html

Nicely done

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It's a paradigm shift

Nice find, pairOdime.

Ahhh. Sad but true. We've now waited over a year (my wife's choice to hold out until Dr. Sclafani returned) and I've watched her decline noticeably during this time. A few more months? We'd be hard pressed to call it insubstantial. However, I will continue to honor her decision.

Will the patients feel comfortable posting their outcomes on this forum? I haven't seen much but then I'm new here and still getting the feel for it. Can anyone tell me if there's a different site where patients are reporting their outcomes?

Strongshoulder, has she been on Dr. Sclafani's wait list from the beginning? I am sad to hear that she has declined during this time. Is she a cash or Medicare patient or has any of the insurance companies listed on the previous page?

For outcomes, patients often start their own thread. If you read back through the other pages, there are plenty to find. JCB's and CUREious's have been updated recently, they're here on the first page.

And welcome to the forum.

How long does it take to hear about doppler results from AAC Brooklyn?

Thanks in advance for a reply.

Welcome to TIMS.
Here is the link to a sticky thread (always stays in the top section on page one) in which patients post their progress in a standardized format: http://www.thisisms.com/ftopict-8346.html

Thank you. It will be nice to follow along and get to know the group. Sharing the burden too, in a way.

Just a tip for those of you are either self pay, or, if you have insurance and are traveling great distances and cannot afford a boutique hotel like the one recommended, and if you cannot afford to eat out seven days and nights, (like me) there is a great website: www.airbnb.com where people offer rooms and apartments for rent, some with kitchens etc, much cheaper than hotels. I am sure one can find something near Dr Sclafani..I am currently searching myself for April, when I hope to be scheduled.

Just thought this might help some folks out there.

Zina

does anybody know the mailing address for holly and dr sclafani? thanks.

nevermind. i have it.

we have had trouble getting that organised and it is taking too long. sorry to all

Dr. Sclafani,

When do you think there will be CCSVI procedures performed through American Access Care or any IR or Vascular doctor in the Pittsburgh area? I think I saw the there is an AAC in the Pittsburgh area.