This Is MS Multiple Sclerosis Community: Knowledge & Support

Why don't you search Scorpion as the author of the post ... and find the topic "hey ladies and gentlemen" ... you can see for yourself he wrote it!



The same way I did.

It's on page 8 of the list of all of his posts ... and it's a topic he started ... and it's the first post in the thread.

Thanks and have a nice day!

I don't doubt that I did say that and I've never wished anything but the best to anyone pursuing treatment.

My being an "opponent" of CCSVI and wishing anyone other than the best is something you've dreamed up. It's called "live and learn". I likely wouldn't repeat that considering what we've learned in the time since.

What can I say? I wasn't skeptical enough back then.....

Again, despite the info you provided, scorpion didn't make any posts between Oct 15, 2009 and Oct 19, 2009 as per the links I provided.

Again, despite the info you provided, scorpion didn't make any posts between Oct 15, 2009 and Oct 19, 2009 as per the links I provided

It is on Oct 15th at 1:04 p.m. titled "Hey Ladies and Gentleman"...can we end this now...

Posting times that appear with a specific post may vary depending on the settings in a member's profile.

http://www.thisisms.com/ftopicp-71254.html#71254

Enough for now!


NHE

Well, at least it's not about Dr. Freedman any more. Oops, I spoke too soon. Threads are erupting like pimples. Oh, dear. Time for another rest from TiMS...

Got a nice letter from Dr. Zivadinov today saying Direct-MS has offered to match dollar for dollar, funds up to I think $150,000, received by Buffalo group this calendar year... Time to get out your benefit events, folks...

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

I winced a bit when I read that too. Not sure what risks people were aware of back then? It's not a statement I'd make now either and I am in the pro-CCSVI camp.

True, and not to throw people off by my vacillating all over the chart but I'm not saying that eliminating stenosis isn't worth risk, but the point is that we don't know with certainty what the long/short term risks are or what/if any benefits there will be.

Additionally, even if benefit was certain, treatment isn't proving to be a one time deal and it's still being ascertained what the risks of repeated treatments are and if it's even possible to treat with any kind of permanency, ie... what exactly am I getting for the risk I'm accepting over the long haul?

CCSVIhusband, just above your post, Lyon said that eliminating stenosis might be worth some risk. I agree with him on that. He said that we don't yet know what the risks or benefits are. I agree with him on that too, to an extent.

For personal experience, yes, I am highly looking forward to having that. But not everyone is ready to go for this and that's ok too.

I think for even Lyon to have made a statement that this sure as hell wouldn't hurt anyone says that this might have been what everyone thought back then? And now just a year later we are more informed about potential risks, as well as potential benefits, just from the spectrum of outcomes that our friends here have seen.

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com