Thanks for the reply.
Well this is the thing, I've had this problem (whatever it actually is!) for a long time now, it's been bad for about 4 years and very bad for the last 2+ of those - but still no real diagnosis.
I'm currently waiting results for Lyme disease and a few other things (from the Breakspear Medical Group, have you heard of them?) - of course this has been a huge outlay of money already so even if I wanted to rush into anything I think my husband would object due to lack of funds
Where did you have the procedure done? (If you don't mind me asking).
Yes! 'Wooden' shoulders! An osteopath I saw a couple of years ago commented that my scalene muscles were the tightest she'd ever seen and couldn't relax them, neither can my chiropractor, I've tried all the stretching exercises but nothing works - and mine is worse on the right side, which is the side I am hard of hearing on (and have been for about 10 years) and also the side I have most problems on.
I actually did have an angiogram of the brain but it stopped about level with the bottom of my ears so didn't include the neck.
It did show I had one dominant vein (transverse sinus I think?) on the left and reduced flow to the one on the right but was told this was just a normal variation. I don't know if this is significant or not?
I have uploaded a (blurry) photo of it here -
http://i1227.photobucket.com/albums/ee4 ... /veins.jpg
As you look at it the image is reversed (so the left is my right).
Thyroid disease, Vitamin D deficiency, hypermobility, 'ME/CFS', CCSVI (stenosis both sides and assymetric malformed valves), TMJ - No MS but many neuro symptoms.