On the other side, it is completely misleading for MS neuros to demand extensive trials for CCSVI therapy before pwMS are allowed therapy for CCSVI syndrome. They are breaching medical custom and practice in place for many years.
It is important to understand what Prof Zamboni has done by calling CCSVI a syndrome. He has removed the need to identify the underlying cause(s). I hope the definition below helps.
For me, treating the CCSVI syndrome with Balloon Venoplasty before understanding the causes of CCSVI is essential for pwMS. Otherwise we will be waiting for years, maybe decades before therapy is offered to most pwMS.
In medicine and psychology, the term syndrome refers to the association of several clinically recognizable features, signs (discovered by a physician), symptoms (reported by the patient), phenomena or characteristics which often occur together, so that the presence of one feature alerts the physician to the presence of the others. In recent decades the term has been used outside of medicine to refer to a combination of phenomena seen in association.
In technical medical language, a "syndrome" refers only to the set of detectable characteristics. A specific disease, condition, or disorder may or may not be identified as the underlying cause. Confusingly, even once a physical cause has been identified, the word "syndrome" is sometimes kept in the name of the disease. Subjective medical conditions are not supported by evidence of an underlying physical cause.
actually it is, per the rule about not turning off readers by arguing ad nauseum.Moderators please note that if my threads are attacked by naysayers this is not a reason for locking them.
true. and oft repeated hostilities can go on in private.A major role of this forum is to educate pwMS
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