Holly Shean and her death ... a few facts

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Holly Shean and her death ... a few facts

Postby Lauralynx » Wed Dec 08, 2010 8:57 am

Hi All!
This is Holly's older sister finally writing after the urging of Holly's companion to look at different things involving Holly's search for arresting her disease and her quest with Dr. Dake.
Firstly, my mother did NOT have a stroke. She did suffer a brain injury from a bad fall about six years ago.
Secondly, Holly's death was caused from a hemorrhage that was caused by blood thinners, and perhaps too aggressive a move for her.
HOWEVER, Holly was full of hope, knew EXACTLY what was going on with Dr. Dake, and wanted very much to take the chance rather than become a quadriplegic vegetable and suffer any more symptoms from the disease.
We also urged her to take it as far as she could because we had hopes too.
We were shocked by her death and were disappointed but we know that it would be risky. Her companion still looks for answers and wishes that all patients going through these procedures are monitored -- and which I agree -- and stay in the hospital for observation to make sure blood flow is controlled and there are no after affects.
Holly was very courageous, and that was a characteristic that she had all over her life. She was honest, forthright and she would have it no other way but to be a pioneer for this program. And I applaud Dr. Dake and any doctor who will actively try to figure out this disease and relieve symptoms and the progression of it in people who suffer from it.
It has been just over a year after her death, and I am with John -- her faithful, everloving companion, and my family as we remember and deal with our loss of her, and try to sort out our feelings.
And it helps us to talk about this, and gives us peace to share all this with you and discuss the truth of this amongst us.
Thank you!
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Postby Cece » Wed Dec 08, 2010 9:55 am

Laura, I can't begin to say how sorry I am for your loss. John has posted here from time to time too. It is appreciated, there have been so many distortions of facts in all directions.
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Postby bruce123 » Wed Dec 08, 2010 9:59 am

Thank you for posting Laura.

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Postby Blaze » Wed Dec 08, 2010 10:29 am

Holly's spirit and spunk continue to live here and inspire us. Blessings to you and your family.
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Postby Ruthless67 » Wed Dec 08, 2010 10:46 am


Thank you for writing in and speaking about Holly, her journey and personal courage. I joined TIms around the time you lost your beloved Holly, so I never got to converse with her personally on the board. I have read her posts though and they were full of hope. Her passing is a real shame and loss. My best to you, John and the rest of the family.

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Postby CureIous » Wed Dec 08, 2010 1:05 pm

Thank you so much for coming in and sharing with us. Holly was a beacon for many. She was the 3rd person after Mom and my wife that I called on the way home from Stanford, we were looking forward to chatting again when she got home from her follow up. She had such an impact on those whom she touched even briefly, such a loss for your family, her family here at TIMS, it can't even be put into words. We miss her, even those like me that only had the briefest of encounters.

She will NEVER be forgotten. Give Jerkbutt a hug from his collective TIMS family, please keep us informed as to how you all are doing.

RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Lyon » Wed Dec 08, 2010 1:31 pm

Last edited by Lyon on Sun Nov 20, 2011 5:10 pm, edited 1 time in total.
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Postby Rosegirl » Wed Dec 08, 2010 1:56 pm

Laura, I'm sure Holly would appreciate your wonderful tribute to her and the people who tried to help her. You are obviously as brave and kind as her.

Thank you for sharing your heart with us.
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Postby magoo » Wed Dec 08, 2010 5:08 pm

She was brave and has helped many of us here.
Thank you so much for sharing.
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby prairiegirl » Wed Dec 08, 2010 5:26 pm

Thanks for taking the time to post this, Laura. Wish all of you the very best.
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Postby soapdiva884 » Wed Dec 08, 2010 8:28 pm

Laura, I would like to personally thank you for taking time out to post on here. I am so very sorry for your loss and pray that you and your family and friends have found peace.
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Postby CRHInv » Wed Dec 08, 2010 9:36 pm

Thank you so much for the information. I am so sorry for your loss. I really appreciate you coming here. We miss Holly.
Take care,
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby HappyPoet » Thu Dec 09, 2010 4:55 am

Laura, your post is very beautiful. Thank you for coming here with John. Your visit will help many of us as we remember Holly. She will always be an important part of this forum, the part that holds us all together and reminds us that we are all part of the same family. Holly will always be remembered.
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Postby Trish317 » Thu Dec 09, 2010 9:13 am

My thoughts and prayers are with you and your family as you continue to deal with the devastating loss of your beloved sister. I didn't have the honor of knowing Holly but her loss diminishes us all.

God bless you....
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Postby coach » Thu Dec 09, 2010 12:26 pm

Thanks for posting Laura. Many of us are indebted to Holly for her bravery. She will still remain in our memories. So sorry for the loss to those that loved her.
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