This Is MS Multiple Sclerosis Community: Knowledge & Support

I got my follow up doppler in Calgary, but I had to be a bit of a biatch in order to get it!

My GP gave me the referral and then the ultrasound place said they "couldn't" do it. Gave me some crap lines about it being experimental/College of Physicans says no, etc.. My response was that I wasn't looking for a diagnosis of CCSVI, but to make sure my stent was still patent. I also said "If you can't do venous dopplers, why is there a check box on your form for it?".

I ended up having to go up a couple of levels of management. To really make my point, I also sent them a copy of the Zamboni protocol from a vascular journal.

Moral of the story - don't take no for an answer. You have to be your own health advocate.

Trish, you have always been such a supportive advocate and I am sorry to hear this latest. I've 'followed' you/your darling as our treatment dates were not too far apart. I went to Albany in Aug and am pretty sure that I have restenosed. I haven't been successful in finding an IR to do follow-up D/US, Zamboni/Haacke protocol. It was suggested to me that I ask Dr S in Albany about a simple ultrasound. He gave me the criteria to ask for. I'd suggest the same to darling man? I know it's not the preferred test but it sounds like it's at least adequate...