Their page is now past 18,000 registered users who "like" CCSVI. (double the amount of registered users here at TiMS ... and of the amount here, I've probably seen less than a few hundred post in the past year). Facebook is growing by the thousands every other month at the current pace ... the word has obviously gotten out there, and will continue to do so as trials come on-line in 2011 ... it's a very exciting place to be.
It is a great place for information, and now added, discussion - just like here but better! (sadly this used to be the best place to go)
More people post about results on there, they have the Hubbards who update regularly, Cheer (the moderator there) posts new research regularly, and the only thing they miss, sadly, is Dr. Sclafani ... but I suspect as he begins treating CCSVI full time in the near future, his time here will be more and more limited ... but nonetheless valuable.
oh and Facebook also lacks the drama and resulting pettiness (along with the private messages that show up in your inbox at all times of day) of this site. It's a great place, check it out if you can!
Great information shared, a lot of research that explains the why behind CCSVI - stuff this site used to have, before it became polluted.
Just wanted to give them a shout out for actually doing a great job running that board, keeping conversations on topic and advocating for CCSVI, with a lot of people with personal experience to answer any questions you have.
Newbies, be sure to check it out - along with the CCSVI Alliance.
It's sad this forum, and website ThisisMS.com, have fallen as far as they have in the last 12 months. Partly due to lack of institutional control ... and partly because those interested in the why and how have moved on for several reasons ... most due to successful liberations, and some to start up the alliance, contribute on Facebook and to be true advocates for this breakthrough procedure.
Don't let them tell you otherwise. It is INDEED a breakthrough procedure for treating "MS symptoms" that are obviously related to poor venous function.
I see the proof every day that liberation works. It's truly been an amazing year. Let's hope CCSVI's tidal wave continues to build through 2011. And as more of us with personal experience move on to the Alliance and to Facebook ... don't listen to the noise, don't fall into the trap, this (CCSVI) is a HUGE medical breakthrough!
Go to Facebook, and search CCSVI in Multiple Sclerosis, and like the page! It's well worth setting the visit and the information.