NotFound wrote:I am not sure how I would be able to tell.
From what I understood there is no "follow up" as we know it, unless we choose to undergo venography again.
Unless one can estimate by disappearance / reappearance of symptoms, but that is if one HAD change in symptoms (I didn't. Yet?)
I agree with the confusion. I too was told that this was not something that they expected to see, so they didn't feel that they needed to look for it with follow-up. HOW CAN YOU KNOW IF YOU DON'T LOOK?
My symptoms improved a bit for three days, then got worse again. Not only that I had pain in the teated jugulars, and was unable to get hold of Dr. Harris at PI dailyl for over a week. I was told by Dr. Dake's office that since I had been treated elsewhere he would only see me for follow up if he got a Dr. to Dr. request from the treating Dr. So I was SOL. I have never had any follow up so I don't know.
I am a bit uncertain, but I think that PI has experience treating veins in the other venous angioplasty they do...Dialysis and Oncology and that is the reason they do not expect to see restenosis in the CCSVI patients, they do not see it in their other patients. However, the veinous occlusions would be totally different in those two diseases and CCSVI so the comparison would not be appropriate. They should know that.
Sorry, not much good to say about PI I am afraid.