CCSVI Alliance to host educational symposium

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bettyboop » Tue Jan 11, 2011 1:20 pm

cheerleader wrote:Pictures up at CCSVI Alliance Facebook page, and video will be up at www.ccsvi.org in the near future.

We enjoyed a very successful evening at Brandeis University near Boston, with a diverse crowd (patients who have been treated, patients who have not, folks from the NMSS, interventional radiologists, etc.), a broad range of questions, and engaged participants. Many people arrived curious and/or skeptical and left intrigued and interested in learning more. We opened some minds.

Dr. Dake highlighted what we know and don't know about CCSVI and MS, particularly that CCSVI is only one of many factors that may contribute to MS - - but it is a factor, may be one of the very few, that can be treated and even corrected. He answered questions for more than an hour, including many about safety and about the differences between neurologists' and interventional radiologists' perspectives about CCSVI .

A big thank you to the 75+ people who attended, the volunteers who helped pull it all together, and of course Dr. Dake. We'll let you know when a video of the evening is up on www.ccsvi.org


http://www.facebook.com/pages/CCSVI-All ... 2427429118


I am interested in where I can read about "questions" and "answers", please?
BB.
bettyboop
 

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Postby cheerleader » Tue Jan 11, 2011 1:32 pm

BettyBoop wrote:I am interested in where I can read about "questions" and "answers", please?
BB.


Hi Betty,
the video with the Q and A session will be at www.ccsvi.org in a week or so. Someone from the Alliance will post on here when it's up, or you can check the site yourself.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Cece » Wed Jan 12, 2011 6:59 pm

Dr. Dake highlighted what we know and don't know about CCSVI and MS, particularly that CCSVI is only one of many factors that may contribute to MS - - but it is a factor, may be one of the very few, that can be treated and even corrected.

Love it, love it. That is very well put.
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Postby cheerleader » Mon Jan 24, 2011 8:25 am

The video is now up at

www.ccsvi.org

"In my view, venous obstruction is a promoter for MS, like many other things are promoters for MS .... but what has people excited (about CCSVI) is that this promoter is reversible." Dr. Michael Dake
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Cece » Mon Jan 24, 2011 8:45 am

What do people think about that - is CCSVI a promoter for MS? Nothing more, nothing less? Or is this just the most that can be said at this time but it is more than a mere promoter? I am curious what others think.
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