CCSVI Alliance to host educational symposium

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI Alliance to host educational symposium

Postby Sharon » Thu Dec 16, 2010 3:58 pm

Location: Mandel Center, Brandeis University
415 South Street
Waltham, MA 02453 US
When: Monday, January 10, 6:30PM

MS and the CCSVI Connection:
What do we know?
What don't we know?
Where do we go from here?

Please join CCSVI Alliance for an educational journey
into the connection between CCSVI and MS
with pioneering CCSVI researcher Dr. Michael Dake, Professor of Cardiothoracic Surgery -Stanford University School of Medicine

Monday, January 10, 2011

6:30 pm Registration
7:00 pm - 9:00 pm Presentation and Q&A

RSVP via Evite here or by emailing info@ccsvi.org

To support activities like this educational evening, please make a tax deductible donation to CCSVI Alliance at www.ccsvi.org or by sending a check to CCSVI Alliance, 22 Tommys Path, Northford, CT 06472.

CCSVI Alliance is a 501(c)3 nonprofit dedicated to educating MS patients about CCSVI, supporting medical professionals' investigations of CCSVI, and advancing CCSVI knowledge.
www.ccsvi.org

Sharon Richardson, President
CCSVI Alliance
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Re: CCSVI Alliance to host educational symposium

Postby pairOdime » Sat Dec 18, 2010 10:13 am

Sharon wrote:Location: Mandel Center, Brandeis University
415 South Street
Waltham, MA 02453 US
When: Monday, January 10, 6:30PM

MS and the CCSVI Connection:
What do we know?
What don't we know?
Where do we go from here?

Please join CCSVI Alliance for an educational journey
into the connection between CCSVI and MS
with pioneering CCSVI researcher Dr. Michael Dake, Professor of Cardiothoracic Surgery -Stanford University School of Medicine

Monday, January 10, 2011

6:30 pm Registration
7:00 pm - 9:00 pm Presentation and Q&A

RSVP via Evite here or by emailing info@ccsvi.org

To support activities like this educational evening, please make a tax deductible donation to CCSVI Alliance at www.ccsvi.org or by sending a check to CCSVI Alliance, 22 Tommys Path, Northford, CT 06472.

CCSVI Alliance is a 501(c)3 nonprofit dedicated to educating MS patients about CCSVI, supporting medical professionals' investigations of CCSVI, and advancing CCSVI knowledge.
www.ccsvi.org

Sharon Richardson, President
CCSVI Alliance



This symposium is coming up quickly :)
It's a paradigm shift
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Postby cheerleader » Sat Dec 18, 2010 10:19 am

Yes, it's coming up quickly, and should be a great opportunity for the Boston community of doctors, researchers, and pwMS and caretakers to learn more about CCSVI. The CCSVI Alliance is working hard to encourage dialogue and research. Hope those in the Boston area can attend!
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dx dual jugular vein stenosis (CCSVI) 4/09
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Postby Cece » Sat Dec 18, 2010 9:56 pm

Love the questions:
What do we know?
What don't we know?
Where do we go from here?

Sounds like another great event!

Minneapolis might be a great place for a symposium someday or other, y'know.... :D

ISET is also coming up later in January, not sure where?
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Re: CCSVI Alliance to host educational symposium

Postby NHE » Sat Dec 18, 2010 11:02 pm

Hi Cheer,
Do you know if this symposium will be recorded and made available for those that cannot attend? It would be great if it was recorded.

Thanks, NHE
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Postby Sharon » Tue Dec 21, 2010 8:14 am

NHE and All,

Yes, CCSVI Alliance's inaugural educational symposium will be recorded and posted on the Alliance website www.ccsvi.org.

If you know of anyone in the Boston area who might be interested in attending, please pass along the invitation.

Best wishes to everyone during the Holiday Season.
Sharon
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Postby drsclafani » Tue Dec 21, 2010 5:55 pm

Cece wrote:Love the questions:
What do we know?
What don't we know?
Where do we go from here?

Sounds like another great event!

Minneapolis might be a great place for a symposium someday or other, y'know.... :D

ISET is also coming up later in January, not sure where?


Miami
paolo, mike, ziv and i will be there!
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Postby Sharon » Tue Dec 21, 2010 7:37 pm

ISET will be in Miami starting January 16th - www.iset.org. Please go to the website to view the programs. CCSVI is receiving a great amount of interest at ISET. There will be two mornings devoted to the discussion. The opening session on Monday morning is a town hall discussion " Controversy Rages! Chronic Cerebrospinal Venous Insufficiency: Is It Real and Is There a Role for Endovascular Therapy?" I have been asked as president of a patient advocacy group to be a part of the panel. (including Dr. Zamboni, Dr. Dake, Dr. Burks, Dr. Sclafani, Dr. Benanti and Dr. Machan) Thursday morning: "Symposium on Practical Issues Associated with CCSVI".
CCSVI Alliance will be hosting a vendor table at ISET - this is a great opportunity for MS patients, caregivers, and the CCSVI Alliance. I plan on "tweeting", sending pictures, and recording interviews.

Sharon
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Postby MrSuccess » Tue Dec 21, 2010 9:03 pm

nice work Sharon . As we see CCSVI progress ..... this meeting and all subsequential CCSVI meetings ..... will have more and more CCSVI discovery's to share .... courtesy ..... of these great pioneer medical explorers .

I look forward to viewing the event .

Again ..... nicely done.





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Postby cheerleader » Fri Jan 07, 2011 8:21 am

There are still some seats available for this free educational event hosted by CCSVI Alliance, featuring Dr. Michael Dake on MONDAY, January 10th. If you're in the Boston area, and interested--

Here's the evite

link to evite

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Wichita » Sat Jan 08, 2011 7:59 pm

Dr. Sclafani wrote about the ISET conference:

Miami
paolo, mike, ziv and i will be there!


We would love to go and hear the discussion. Can patients attend who are not doctors, nurses, engineers, etc?

The registration fees look pretty steep:

http://www.iset.org/index.cfm?do=cnt.page&pg=1014
Choose Liberation.
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Postby Cece » Sat Jan 08, 2011 8:20 pm

Those fees are steep. I think the hospitals pay for their physicians to attend these as part of their continuing education/conferences budget. It seems limited to physicians et al except for the category of "spouse" who can get in for $100, perhaps a quickie marriage is in order. :D
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Postby cheerleader » Mon Jan 10, 2011 10:22 am

It's tonight at Brandeis---
look for a video recording at www.ccsvi.org in the coming week or so.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby tzootsi » Mon Jan 10, 2011 2:41 pm

We were considering going, but a 2 1/2 hour drive is tough on a weeknight!
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Postby cheerleader » Tue Jan 11, 2011 1:09 pm

Pictures up at CCSVI Alliance Facebook page, and video will be up at www.ccsvi.org in the near future.

We enjoyed a very successful evening at Brandeis University near Boston, with a diverse crowd (patients who have been treated, patients who have not, folks from the NMSS, interventional radiologists, etc.), a broad range of questions, and engaged participants. Many people arrived curious and/or skeptical and left intrigued and interested in learning more. We opened some minds.

Dr. Dake highlighted what we know and don't know about CCSVI and MS, particularly that CCSVI is only one of many factors that may contribute to MS - - but it is a factor, may be one of the very few, that can be treated and even corrected. He answered questions for more than an hour, including many about safety and about the differences between neurologists' and interventional radiologists' perspectives about CCSVI .

A big thank you to the 75+ people who attended, the volunteers who helped pull it all together, and of course Dr. Dake. We'll let you know when a video of the evening is up on www.ccsvi.org


http://www.facebook.com/pages/CCSVI-All ... 2427429118
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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