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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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pklittle
PostPosted: Fri Dec 17, 2010 8:01 am 
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I would appreciate hearing experiences from anyone who had venoplasty done w/o stent, developed a clot that blocked their internal jugular, and decided to have it corrected. Please tell me the procedure used, the time lapse between clotting and decision to remove, and the outcome.
(PM if you want to discuss privately.)
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Nasti
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PostPosted: Sat Dec 18, 2010 1:34 am 
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This person

http://www.youtube.com/watch?v=l-EVEik_ ... er&list=UL

had a clot removed without surgery, take a look at all of the videos by her, she mentions this.
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pklittle
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PostPosted: Sat Dec 18, 2010 8:55 am 
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Nasti wrote:
This person

http://www.youtube.com/watch?v=l-EVEik_ ... er&list=UL

had a clot removed without surgery, take a look at all of the videos by her, she mentions this.


I have seen Denise's videos, thanks. She was Dr. Siskin's first patient, I believe. She has many stents.
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pklittle
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PostPosted: Sat Dec 18, 2010 9:17 am 
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LR1234 wrote:
yes, I developed a clot in left jugular vein and had it removed via open neck surgery. The dr's in the UK felt it too risky to use thrombolysis due to the location. I have been on blood thinners ever since. In the meantime gt hold of some nattokinase (200mg per day) it might not do anything but its worth a shot x
Not sure of outcome as dr refuses to rescan as if it has reclotted nothing can be done. He would prefer me not to know psychologically!


How are your symptoms?
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Rici
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PostPosted: Sat Dec 18, 2010 2:11 pm 
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Location: Poland Bialystok
Hi
I'll probably be good news for you.
Regards
Rici
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Blaze
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PostPosted: Sat Dec 18, 2010 3:14 pm 
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LR, it's always good to hear from you and know you are doing OK now because your initial complications from the clot were quite alarming.
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Rici
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PostPosted: Sat Dec 18, 2010 4:23 pm 
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Nasti wrote:
This person

http://www.youtube.com/watch?v=l-EVEik_ ... er&list=UL

had a clot removed without surgery, take a look at all of the videos by her, she mentions this.


Hi
I have written about stents in women:
http://www.thisisms.com/ftopicp-140258-.html#140258
However, there is a chance for good information.
Regards
Rici

:)
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Cece
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PostPosted: Sat Dec 18, 2010 10:07 pm 
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pklittle, the suspense...you are still deciding whether to go for clot removal?
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pklittle
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PostPosted: Mon Dec 20, 2010 5:27 pm 
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Cece wrote:
pklittle, the suspense...you are still deciding whether to go for clot removal?


yup. 8O
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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