A new red balloon at the Hubbard Registry

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

A new red balloon at the Hubbard Registry

Postby David1949 » Fri Dec 17, 2010 2:22 pm

Louis Solis, MD, Poughkeepsie, NY

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Postby HFogerty » Fri Dec 17, 2010 5:24 pm

I live in the town right next to Poughkeepsie! Who would have thought! :D
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Postby David1949 » Sat Dec 18, 2010 2:04 pm

It looks like New York is becomming the Liberation capital of the world.
Sadly Michigan is not.

A line from the University of Michigan fight song goes;
"Hail! Hail! to Michigan the leaders and the best."

With regard to CCSVI we might have to change that to;
"The followers of the rest"
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Postby CCSVIhusband » Sat Dec 18, 2010 9:15 pm

The rest of the BigTen has multiple versions of your fight song David ... maybe you'd enjoy them more as it relates to CCSVI ... though I don't think the school and state of CCSVI are intertwined.
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Postby David1949 » Sat Dec 18, 2010 10:06 pm

Sorry, just expressing my frustration with the lack of treatment in Michigan.

BTW I did contact U of M's medical school and asked if they were studying CCSVI and if they would treat me for it. Their answer was a flat no! Maybe that was more like "no way!!!"
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Postby Cece » Sat Dec 18, 2010 10:13 pm

David1949 wrote:With regard to CCSVI we might have to change that to;
"The followers of the rest"

Can we add an exception verse for Dr. Haacke? He's in Michigan, he's doing all right by CCSVIers. :)
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Postby David1949 » Sun Dec 19, 2010 1:30 pm

Most assuredly Dr. Haacke is doing great research. He's one of my heros. The problem is that in the state of Michigan treatment is not being done.
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Postby Cece » Sun Dec 19, 2010 5:21 pm

I know some folks know what the Novi, MI, address is, from the registry map!
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Postby David1949 » Sun Dec 19, 2010 9:39 pm

I have the Novi address too but it doesn't help until they open their doors for business. Also I talked to them several months ago before they were involved with Hubbard. At that time they said they were thinking about doing the examination only and not the procedure. So it's possible that their balloon might turn green instead of red. Hopefully they'll do both though.
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Postby Cece » Sun Dec 19, 2010 9:51 pm

Ah, you are better informed than I am.

I hope treatment comes to MI soon. When it came to MN, I was caught off-guard, I'd thought it would take longer.
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Postby bretzke » Mon Dec 20, 2010 6:01 pm

David1949 wrote:I have the Novi address too but it doesn't help until they open their doors for business. Also I talked to them several months ago before they were involved with Hubbard. At that time they said they were thinking about doing the examination only and not the procedure. So it's possible that their balloon might turn green instead of red. Hopefully they'll do both though.


David and all Michiganders-

My daughter wants to fire her neurologist. He's that loveable anti-ccsvi guy from Wayne State. Any recommendations for a Michigan neuro?

PM me if you have a recommendation.

Brian
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Postby newlywed4ever » Mon Dec 20, 2010 7:23 pm

Brian - my neuro did the typical office exams (not MRI) and was impressed that I had improved since a year ago. He then asked me what I was doing differently. At that point, I told him about my angio for CCSVI. He had "heard of it but really doesn't know much". By the end of my visit he asked me if I would mind if he gave out my name & phone # to another patient!! I wasn't too impressed with this neuro prior to now. The bad news?...he's in Marquette.
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Postby David1949 » Mon Dec 20, 2010 9:24 pm

Brian
Sorry but I haven't seen a neuro for over 7 years.
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