The most clear answer ever

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

The most clear answer ever

Postby frodo » Mon Dec 20, 2010 3:10 pm

I didn't see this before. There is a FAQ of the hilarescere foundation and one of the answers is surprisingly clear:

Q: Does CCSVI treatment affect the course of MS?

A: Yes, it does. The data we have published show that improved venous circulation in the brain reduces the number of relapses and active lesions and improves the quality of life. In patients with progressive MS these processes can be stopped or slowed down. Since these findings have been consistent through a period of 2 years, this treatment should be seriously regarded as effective and added to the existing ones.

Is the first time I read something this clear from an organization

Link:

http://www.fondazionehilarescere.org/en ... ponde.html
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Postby MarkW » Mon Dec 20, 2010 3:20 pm

Thanks Frodo. So much great info is available for us..........MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Re: The most clear answer ever

Postby scorpion » Mon Dec 20, 2010 3:43 pm

frodo wrote:I didn't see this before. There is a FAQ of the hilarescere foundation and one of the answers is surprisingly clear:

Q: Does CCSVI treatment affect the course of MS?

A: Yes, it does. hat improved venous circulation in the brain reduces the number of relapses and active lesions and improves the quality of life
. In patients with progressive MS these processes can be stopped or slowThe data we have published show ted down. Since these findings have been consistent through a period of 2 years, this treatment should be seriously regarded as effective and added to the existing ones.

Is the first time I read something this clear from an organization

Link:

http://www.fondazionehilarescere.org/en ... ponde.html


What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.
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Re: The most clear answer ever

Postby frodo » Mon Dec 20, 2010 5:03 pm

scorpion wrote:
What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


If you are really interested you should ask Hillarescere foundation for more information. I simply trust them because they can face legal problems if this information is not accurate.

Besides, you know perfectly that several trials are on their way, and Hillarescere foundation sponsors at least one in Italy. They probably know something we don't know.
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Postby debp » Mon Dec 20, 2010 6:02 pm

What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


I think Zamboni says there needs to be more testing to determine whether or not CCSVI causes MS.

Meanwhile he has data that shows that improving circulation in the brain, to use the drug companies phrase, "modifies" the course of the disease. I think his numbers are quite a bit better than 30% of people experience improvement.

They aren't claiming that CCSVI causes MS, they are saying that their data shows that improving circulation in the brain reduces relapses.

I am not sure why you think that is misleading?
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Postby ikulo » Mon Dec 20, 2010 6:31 pm

debp wrote:
What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


I think Zamboni says there needs to be more testing to determine whether or not CCSVI causes MS.

Meanwhile he has data that shows that improving circulation in the brain, to use the drug companies phrase, "modifies" the course of the disease. I think his numbers are quite a bit better than 30% of people experience improvement.

They aren't claiming that CCSVI causes MS, they are saying that their data shows that improving circulation in the brain reduces relapses.

I am not sure why you think that is misleading?


I like that. Venoplasty is a disease modifying treatment ("DMT")! It is not a cure, and it is inconclusive whether it halts progression in the long run. Just like the drugs, but without the whole deadly brain infection thing. Hell, Teva Pharmaceuticals doesn't even know how copaxone works, so why not.
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