This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 12:05 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 6 posts ] 
Author Message
PostPosted: Mon Dec 20, 2010 3:10 pm 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 521
I didn't see this before. There is a FAQ of the hilarescere foundation and one of the answers is surprisingly clear:

Q: Does CCSVI treatment affect the course of MS?

A: Yes, it does. The data we have published show that improved venous circulation in the brain reduces the number of relapses and active lesions and improves the quality of life. In patients with progressive MS these processes can be stopped or slowed down. Since these findings have been consistent through a period of 2 years, this treatment should be seriously regarded as effective and added to the existing ones.

Is the first time I read something this clear from an organization

Link:

http://www.fondazionehilarescere.org/en ... ponde.html

_________________
You can get a worldwide list of available sites for CCSVI at http://www.ccsviclinic.info


Top
 Profile  
 
 Post subject: Helpful post
PostPosted: Mon Dec 20, 2010 3:20 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 19, 2006 3:00 pm
Posts: 1052
Location: Oxfordshire, England
Thanks Frodo. So much great info is available for us..........MarkW

_________________
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html


Top
 Profile  
 
PostPosted: Mon Dec 20, 2010 3:43 pm 
Offline
Family Elder
User avatar

Joined: Wed Nov 05, 2008 4:00 pm
Posts: 1323
frodo wrote:
I didn't see this before. There is a FAQ of the hilarescere foundation and one of the answers is surprisingly clear:

Q: Does CCSVI treatment affect the course of MS?

A: Yes, it does. hat improved venous circulation in the brain reduces the number of relapses and active lesions and improves the quality of life
. In patients with progressive MS these processes can be stopped or slowThe data we have published show ted down. Since these findings have been consistent through a period of 2 years, this treatment should be seriously regarded as effective and added to the existing ones.

Is the first time I read something this clear from an organization

Link:

http://www.fondazionehilarescere.org/en ... ponde.html


What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


Top
 Profile  
 
PostPosted: Mon Dec 20, 2010 5:03 pm 
Offline
Family Elder
User avatar

Joined: Wed Dec 02, 2009 4:00 pm
Posts: 521
scorpion wrote:

What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


If you are really interested you should ask Hillarescere foundation for more information. I simply trust them because they can face legal problems if this information is not accurate.

Besides, you know perfectly that several trials are on their way, and Hillarescere foundation sponsors at least one in Italy. They probably know something we don't know.

_________________
You can get a worldwide list of available sites for CCSVI at http://www.ccsviclinic.info


Top
 Profile  
 
 Post subject:
PostPosted: Mon Dec 20, 2010 6:02 pm 
Offline
Family Member
User avatar

Joined: Sun May 16, 2010 3:00 pm
Posts: 25
Quote:
What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


I think Zamboni says there needs to be more testing to determine whether or not CCSVI causes MS.

Meanwhile he has data that shows that improving circulation in the brain, to use the drug companies phrase, "modifies" the course of the disease. I think his numbers are quite a bit better than 30% of people experience improvement.

They aren't claiming that CCSVI causes MS, they are saying that their data shows that improving circulation in the brain reduces relapses.

I am not sure why you think that is misleading?


Top
 Profile  
 
 Post subject:
PostPosted: Mon Dec 20, 2010 6:31 pm 
Offline
Family Elder
User avatar

Joined: Tue Aug 04, 2009 3:00 pm
Posts: 445
Location: colorado
debp wrote:
Quote:
What data? Zamboni is still saying there needs to be more testing to prove exactly what effect the treatment of CCSVI has on MS. I do not know why they would say something like this. This is VERY misleading.


I think Zamboni says there needs to be more testing to determine whether or not CCSVI causes MS.

Meanwhile he has data that shows that improving circulation in the brain, to use the drug companies phrase, "modifies" the course of the disease. I think his numbers are quite a bit better than 30% of people experience improvement.

They aren't claiming that CCSVI causes MS, they are saying that their data shows that improving circulation in the brain reduces relapses.

I am not sure why you think that is misleading?


I like that. Venoplasty is a disease modifying treatment ("DMT")! It is not a cure, and it is inconclusive whether it halts progression in the long run. Just like the drugs, but without the whole deadly brain infection thing. Hell, Teva Pharmaceuticals doesn't even know how copaxone works, so why not.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 6 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Veins were clear

laura383

7

1069

Wed Jun 29, 2011 11:59 am

laura383 View the latest post

There are no new unread posts for this topic. SIDS and ms, unclear etiologies, clear therapies?

Bruce11940

5

975

Wed May 26, 2010 10:57 am

Cece View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: