This Is MS Multiple Sclerosis Community: Knowledge & Support

Well, you could note the "or something" as I am not a medical professional and I don't know all the subtle nuances of the terminology, however, I am trying to learn.

I just meant that in treating MS, it should be clearly demonstrated to the medical world at large that it is a viable MS treatment and enough to justify the hysteria and paranoia that has engulfed this grassroots movement. (If you want to argue that point I have treasure troves of messages insinuating that I'm an employee of a big pharma firm.)

Emotional pleas are all fine and dandy, but inadequate in satiating the desires of the scientific community, namely, a desire for proof. So please just clearly demonstrate it in a reputable journal how CCSVI causes or is a major co-morbidity factor in MS and how "Liberation" could alleviate MS symptoms and we can end all this suspense.

But what if all he's treating is fatigue, cognitive issues, etc. SYMPTOMS of CCSVI ...

So is there anything that says what the symptoms of CCSVI are? (For that matter, does anyone have a precise definition of CCSVI?)

Given that CCSVI is a relatively new concept, how can the symptoms be so clearly defined? A study, whether phase I or II, would be useful in determining what these symptoms are, and what might be helped by angioplasty.

Neurorehabil Neural Repair. 2008 Jan-Feb;22(1):91-100. Epub 2007 Apr 4.

Origin of fatigue in multiple sclerosis: review of the literature.
Kos D, Kerckhofs E, Nagels G, D'hooghe MB, Ilsbroukx S.

Vrije Universiteit Brussel, Department of Rehabilitation Research, Brussels, Belgium. Daphne.Kos@vub.ac.be

Abstract
Fatigue is one of the most common and most disabling symptoms of multiple sclerosis (MS). Although numerous studies have tried to reveal it, no definite pathogenesis factor behind this fatigue has been identified. Fatigue may be directly related to the disease mechanisms (primary fatigue) or may be secondary to non-disease-specific factors. Primary fatigue may be the result of inflammation, demyelination, or axonal loss. A suggested functional cortical reorganization may result in a higher energy demand in certain brain areas, culminating in an increase of fatigue perception. Higher levels of some immune markers were found in patients with MS-related fatigue, whereas other studies rejected this hypothesis. There may be a disturbance in the neuroendocrine system related to fatigue, but it is not clear whether this is either the result of the interaction with immune activation or the trigger of this process. Fatigue may be secondary to sleep problems, which are frequently present in MS and in their turn result from urinary problems, spasms, pain, or anxiety. Pharmacologic treatment of MS (symptoms) may also provoke fatigue. The evidence for reduced activity as a cause of secondary fatigue in MS is inconsistent. Psychological functioning may at least play a role in the persistence of fatigue. Research did not reach consensus about the association of fatigue with clinical or demographic variables, such as age, gender, disability, type of MS, education level, and disease duration. In conclusion, it is more likely to explain fatigue from a multifactor perspective than to ascribe it to one mechanism. The current evidence on the pathogenesis of primary and secondary fatigue in MS is limited by inconsistency in defining specific aspects of the concept fatigue, by the lack of appropriate assessment tools, and by the use of heterogeneous samples. Future research should overcome these limitations and also include longitudinal designs.

http://www.ncbi.nlm.nih.gov/pubmed/17409388

If CCSVI has nothing to do with MS then why are we talking about this on ThisisMS and why is it always billed as an MS treatment? People always talk about stopping progression, shouldn't they be corrected on that, as "liberation" is only for treating fatigue, etc. and not about treating MS?

i do not treat ms.
i treat symptoms such as fatigue, memory and cognitive deficiency, etc caused by venous stenosis. please show evidence that anything currently works for these problems. currently prescribed medications for some of these symptoms are not fda approved for treatment of ms.

Also the continued calls for a phase 1 trial are really bugging me. There was a phase 1 trial. It was in Italy, I think you have all read about it. It showed that the procedure is safe, side effects were rare and results were phenomenal when compared to other currently available therapies.

Isn't MS just a bundle of symptoms? I don't think anyone treats MS, they treat symptoms that are caused by something they have called MS, for lack of better understanding.