4- Aminopyridine

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

4- Aminopyridine

Postby lovebug » Tue Dec 21, 2010 8:00 pm

Does anybody know if 4 Aminopyridine is available in Canada yet? Apparently it is also called Ampyra and Fampridine, I think. I am confused on these names now. Has anybody with MS used this drug to alleviate the pain from numbness and pins and needles feeling in the arms and hands and MS hug? Do you recommend it or not? I am still searching for some sort of pain relief from my numbness feeling for almost 2 years. I have tried Pregabelin, Gabapentin, Amytriptyline, Nortriptyline, 4000 mg. vitamin D, Omega 3-6-9, Vitamin B-100 complex and some of the stronger opiates like Oxycontin. No help from anything. I even had the CCSVI surgery done Sept.in California. No help! Any suggestions.............
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Postby concerned » Tue Dec 21, 2010 11:01 pm

Maybe not exactly what you were looking for but I hope this helps:

http://hubpages.com/hub/Ampyra-Not-for-Canadians

Maybe this should be in the general forum?
Although, on the other hand, I guess you mentioned that the liberation procedure hasn't helped you, as more and more are reporting.
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Postby Algis » Tue Dec 21, 2010 11:12 pm

@lovebug: there is a forum for Ampyra here: http://www.thisisms.com/forum-44.html
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Postby blossom » Tue Dec 21, 2010 11:44 pm

lovebug, so sorry you are going through this. have you been reading dr. flanagan's thread "ccsvi and ccvbp" here on tims? happypoet is getting relief of numbness and the ms hug since she started going to an upper cervical chiro. you might want to check it out.
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Re: 4- Aminopyridine

Postby dania » Wed Dec 22, 2010 6:58 am

lovebug wrote:Does anybody know if 4 Aminopyridine is available in Canada yet? Apparently it is also called Ampyra and Fampridine, I think. I am confused on these names now. Has anybody with MS used this drug to alleviate the pain from numbness and pins and needles feeling in the arms and hands and MS hug? Do you recommend it or not? I am still searching for some sort of pain relief from my numbness feeling for almost 2 years. I have tried Pregabelin, Gabapentin, Amytriptyline, Nortriptyline, 4000 mg. vitamin D, Omega 3-6-9, Vitamin B-100 complex and some of the stronger opiates like Oxycontin. No help from anything. I even had the CCSVI surgery done Sept.in California. No help! Any suggestions.............

It it is available through a compounding pharmacist, quite expensive. And you need a doctor's prescription.
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Postby garyak » Thu Dec 23, 2010 6:28 pm

I take 3 ten mg caps per day for past year. Made at a compounding pharmacy from rx by my neuro. I get mild increase in mobility. Costs $74 per month - about $3-4000 per mo less than the new time released formula.
Last edited by garyak on Fri Dec 24, 2010 7:08 pm, edited 1 time in total.
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Postby pklittle » Fri Dec 24, 2010 12:33 pm

Is this the drug that has a risk of seizures (1%?)?
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Postby garyak » Fri Dec 24, 2010 1:12 pm

pklittle wrote:Is this the drug that has a risk of seizures (1%?)?


Oh ya. I'm not allowed to take more than 30 mg per day. There have been some deaths where the compounding pharmacy had made an error by a factor of ten times the dose and people landed in hospital emerg with seizures, internal bleeding and basically human armagedon.
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Postby lovebug » Sat Dec 25, 2010 2:24 pm

I appreciate all the help folks. I thought 4-aminopyridine just might be what I was finally looking for to help my severe nerve pain but I think I will have to rethink this one for now. Any other suggestions are always welcomed. I was really hoping ,no praying ,that there was something out there in this vast world that would take the pain away. Or at best reduce its intensity. But so far after 2 years , still nothing. So needless to say 2011 is not looking great for me or any other yeas after that............
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