This Is MS Multiple Sclerosis Community: Knowledge & Support

If you don't want to do something, one excuse is as good as another. ~Yiddish Proverb

sounds about right ...


CCSVI doesn't need him to prove out in the end, I just thought it'd be a little personal experience for him and he could ask some doctors some questions and gain some knowledge first hand ... and he could then have a real experience behind his skepticism, and maybe people would take his posts seriously, instead of with the rancor we continue to see.

As it is, it'll just have to continue to be a lot of hot air blown in no particular direction for whatever reason he's skeptical of CCSVI ...

So we are talking for a new disease here. Here is what I was thinking about:

- Let's assume that the occurrence of CCSVI in patients with MS is equal to that of the non-MS population.

- 12/12 friends of mine with MS have been checked and found CCSVI, 100%

- Since the percentages are equal, this means that 100% of my friends without MS will have CCSVI, too. If this happens to all MSer's friends, it makes CCSVI a widespread phenomenon, affecting the entire population.

So CCSVI is normal, just like the heartbeat. However, there must be some unfortunate few that have what we once thought to be "normal venous drainage". I propose that their condition should be called "CCSVH" (CCSV Hypersufficiency) and be treated by stenosing some veins.

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Shortest joke: "We may not be able to cure MS but we can manage its symptoms."

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I don't have the research handy, but it has been shown in pre-CCSVI research that pwMS have reduced cerebral perfusion.

Also, when we talk about 12/12, it strikes me that 1/1 is what matters most: each of us personally either has it or not. It's 1/1 for me.

Lyon, we are in agreement that further research is needed and it seems that further research is being done. We will learn a lot in this next year and the next five years. I cannot wait until we are standing on terra firma as well; these voyages of discovery have their ups and downs.

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Interesting times are ahead of us, behind us, and all around us. Never a dull moment when it comes to CCSVI!!

I'm sure the Wisconsin research will be of interest. No singular bit of research is going to conclusively determine this either way. I am waiting to hear more about the "promising new animal models of CCSVI" that will be presented at the ISNVD conference in the spring.

I am 8 day's out of surgery and this has change:

I can jump!

Balance about 60% better!

Bowel and bladder function both improved about 60%

Strength in leg's about 30-40% better!

Judge NOT lest be judged!!!!

CCSVI-is real and has givin this writer so much back already! I feel compelled to say that the IR who did my surgery said to wait and tell on a month to month basis rather than a day to day basis....so blessed by the Lord!

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...