P. Zamboni is my Kris Kringle.
My first procedure at the vein clinic in del mar california sept 20th and the results are in this original post;
After 2.5 weeks went by after having the first procedure my symptoms started to get worse. I started back to my pre-procedure disability edss of 7.5.
6 weeks post-procedure I was back to square one and assumed I had restenosed. I got a second procedure booked for dec 3rd.
I had indeed restenosed where both internal jugulars had nearly the same amount of stenoses as found in the first venogram.
The same sized balloon (14 mm ) was used as the first procedure and the justification for that was explained to me. The difference this time was the balloon was left inflated for about 2 minutes longer per side than the first procedure.
Now what was a surprise to me was that I got very little improvement right off the bat where in the first procedure I had significant improvement by the second day.
I was a bit dissapointed but again had an open mind and remained patient.
My MS progression has been very fast since my diagnoses in may 08. Prior to my second procedure I was getting worse almost daily in most my symptoms.
Since my secondary procedure I have had NO PROGRESSION WHAT SO EVER. My bladder urgency is 80% better now. My fatigue levels are again at about 75% better than pre first procedure.My hands and arms are only slightly better than pre secondary procedure though. I feel my symptoms are getting slowly BETTER in general since the second procedure.
Before the second procedure I could do 1-2 deep knee bends while holding onto the bed frame in my bedroom. Yesterday I did 100 in the morning and 50 before bed. Today I did 50 this morning as my legs were feeling a bit of the effects from yesterday.
I have not had an MS headache since my first procedure where daily all day long I had one for 5-6 months previous. I have less volume with my ringing in my ears.
My mental health is soaring heading into Christmas - have a very merry Christmas all the pwMS and families here on TIMS.
Is my MS cured? My disability sure is not as I am still in my wheel chair full time but my MS progression is currently on hold.
I thought of suicide daily for the last couple years if and when I got to a certain level of disability but those thoughts are absent now.
P. Zamboni is my Kris Kringle and I am living proof that my quality of life has been helped immensely by this miracle of catheter venography with venoplasty.
Thanks Paulo there really is a Santa Claus