CD wrote:Cece, I meant to comment on your Ultrasound. I have the last copy of mine, and it looks the same. It is called a flap on my report. I wonder if it is the same? Sure looks the same, even the hazy vein after that leaflet showing no flow there, but flow above the leaflet then it stops.
Do doctors use different wording or names for the problems they see?
I also have a movable flap. ???
I think this is very important, and shows that viscosity/flow resistance can be non-linearly related to blood composition (hematocrit) and velocity. There is also a non-linear relationship between viscosity and bloodflow velocity, which must change radically around corners, and may partly explain activity at vessel junctions. I think I have a definite knee in the intensity of my symptoms at a certain air temperature, which also affects the viscosity of blood (non-linearly at that temperature?). More non-linearity is brought to flow resistance by Starling pressures. At some point, the straw may break the camel's back.http://www.cvphysiology.com/Hemodynamics/H011.htm
I think it is about flow, increased viscosity = resistance to flow. Cooler temps = thicker blood.
Cece wrote:This one that I've shown is my left jugular, which was 99% closed, and which restenosed to 70% and needed reballooning in July. My ultrasound in September looked good. But so did my ultrasound in May. So I don't know what amount of confidence to have in it staying open. Valves are resilient, which is not good in this case. I would however not go for a valvulotome approach (cutting off the flap) unless there was a lot of research and data to its safety. My left jugular is little and I wouldn't want to risk complications. I had specific improvements after my 2nd procedure that I can attribute directly to my left jugular being opened, since it was the only thing treated at that time. So I value that left jugular. I have however thought that if it closes up again, I would be open to having it gently ballooned once again, and go that route. There are unknowns too about the safety of repeat ballooning.
Your doctor did not think this flap would respond to retreatment? It's possible that it wasn't ballooned to the right size initially. Without IVUS, they're not able to be precise about that. It is also a concern to do anything that risks the vein when the other side is already damaged.
It still strikes me as absurd to hear theories about dehydration when we have ultrasound images, and IVUS images, of blockages that are fixed. But a lot of what we've seen and heard here is not yet in the medical literature.
4. My right IJV and Ayzgous are fine and flowing, 10 months now with no stents.
2. It is my left IJV also that is the problem. Most people have that same left side as being the problematic one. JMO
3. My IR doesn't think he can get to that problem through the intimal hypeplasia that's my first issue. Then up very high, just under my ear, to balloon and put in another stent on top of the two in that area already to get to that flap, he said I would get intimal hypeplasia again with the new stent. I think Dr Sclafani had that problem with someone on here that had two stents already, and he added a new stent and flow stopped on her.
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