I stopped taking my Copaxone about a month after my CCSVI procedure.
I had been on Copaxone for a year and it was doing nothing for me. CCSVI treatment or not, I would have been going off the Copaxone. Granted, had it not been for the treatment, I would have most likely tried one of the other CRABs.
I am 7 months out from my treatment, off the DMD for 6 months and the improvements are holding. Even my "bad" days are still better than my "good" days before the procedure.
Before treatment I stayed on the copaxone because I was afraid to go off it! Even though I was losing ability at a fairly rapid pace with Copaxone not even slowing it down, I felt like I had to do *something* to try and stop the slide. Does that make any sense?
CCSVI treatment made such a difference for me, that after a month, I was confident enough to stop taking the useless Copaxone.
Having said all that, I don't think CCSVI is the only factor in MS. I will probably be trying LDN now. The side effects of all the other drugs in combination with their questionable effectiveness, makes me want to avoid them. I figure that LDN is a low risk, low side effect solution that may offer some upside.
CCSVI procedure May 31, 2010
RRMS - Official diagnosis January 2009
MS symptoms since at least 2000 (EBV trigger 98?)
75 - 80% Resistant Stenosis in Left Jugular - Stent
Tokuda Hospital, Bulgaria (Dr. Petrov)
Immediate and substantial results!!