ccsvi tomorrow

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

after procedure

Postby ykonstan » Thu Dec 30, 2010 9:02 am

i know u expect new victory but i don't feel anything yet. Dr. Mandato said it can take time to notice any improvement if any at all. I had one jugular and one azygous vein narrowed. they were fixed. Ultrosound after procedure showed they're open now.
I spoke to the doc afterwards and he told me to be patient. So, i do my best.
later on i'll let u know how is everything.
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Postby NotFound » Thu Dec 30, 2010 8:21 pm

Congratulations on having it done!

I know we all expect immediate results, but I did not get them either. Will join you in patiently waiting.

Open veins are good no matter what :)
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Postby HFogerty » Thu Dec 30, 2010 8:35 pm

ykonstan: Dr. Mandato was my doctor as well. He is right, give it time. The standard I was told was "give it 90 days". Give it time to fix the wrong you have had for so long. I believe now that good blood flow is everything. Many things got better for me after a month and have held to date. Wishing you the best. :D
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Postby Cracker » Fri Dec 31, 2010 5:40 pm

Happy New Year !!!
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TO ALL CCSVI PIONEER'S

Postby leetz » Fri Dec 31, 2010 5:47 pm

Yes! Give it time, I too got it done in Albany, I have some balance back, and little bit of leg strength...had EDSS 5.5...now I would say maybe a 4.5 and this is just 11 day's later. Dr. Siskin did mine and he said to NOT evaluate it day by day but more like Month by Month (so I jumped for him anyway, first time in about 2 years)...not too far off the ground buit at least I made it off of the ground!! Praise to the one and only Almighty God!! Bless all of us in the fight, may we prevail...

Happy 2011!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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thanks

Postby ykonstan » Fri Dec 31, 2010 6:59 pm

u encouraged me. thanks a lot. Happy new year everyone.
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Postby mrbarlow » Sat Jan 01, 2011 12:14 pm

Good luck. Please keep posting your progress.

I'm hopefully going for Scan in Uk in February. :)
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Re: TO ALL CCSVI PIONEER'S

Postby David1949 » Mon Jan 03, 2011 5:25 pm

leetz wrote:Yes! Give it time, I too got it done in Albany, I have some balance back, and little bit of leg strength...had EDSS 5.5...now I would say maybe a 4.5 and this is just 11 day's later. Dr. Siskin did mine and he said to NOT evaluate it day by day but more like Month by Month (so I jumped for him anyway, first time in about 2 years)...not too far off the ground buit at least I made it off of the ground!! Praise to the one and only Almighty God!! Bless all of us in the fight, may we prevail...

Happy 2011!!!


Amen!
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procedure

Postby ykonstan » Wed Jan 12, 2011 12:20 pm

today is exactly 2 weeks since i had my procedure in Albany. First days i didnt feel anything at all, then in a week i could sleep better and didn't feel that my body is very hot under blanket - meaning my body temperature was getting to be normal.

In two weeks i lost my good changes and returned back to my previous condition - i think i need to be patient and give it more time.
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Postby SCGirl » Wed Jan 12, 2011 12:57 pm

Good Luck!
I go to Albany on February 18th to see Dr. Mandato. I am a little apprehensive.... Wishing you the best of luck. God bless you.
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it is soooo worth it!

Postby leetz » Wed Jan 12, 2011 8:03 pm

I would do over again in a heartbeat! Remember to give it time and try things lil by lil like balance with one leg etc...

blessing's and to Amen comment.....Amen!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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