MS Hugs? Save that for the charity lovers.
I don't understand this comment (see below). I promise you that Dr. Sclafani is a phenomenal doctor who has proven time and again that he's not out to take advantage of any of us; in fact, quite the opposite is true -- Dr. Sclafani wants to help us, actually help us, and he's passing up his golden retirement to do just that while taking a cut in pay. So let's please allow him to learn all he can about pwMS...
= narcoleptic insomniac.
sometimes require IBT (intrathecal Baclofen therapy) when an attack is both motor and sensory -- treatment is extremely
difficult in this situation.
At its worst, due to the MS hug, my torso randomly feels like 1) Two 20' sharks, one on each side of my body, are biting and grinding my torso in half, 2) A knife is repeatedly stabbing me to death up under both sides of the front of my rib cage, 3) A guillotine is repeatedly slicing my body in half, or 4) An invisible force is squeezing me to death.
This torso spasticity and pain, which make it difficult, and sometimes impossible, to hold myself upright, are why I'll soon be having the IBT pump
implanted in my spine, and I'm actually looking forward to having my pain control be much more consistent and being able to take much less Baclofen, methadone, Oxycontin, and Lyrica.
Correlation is to a growing "longitudinal" lesion covering five cord segments, T5-T9 -- I find it strange that no Azygos stenosis was found on venography. Between all my ribs, the intercostal muscles are now affected giving me a "complete" MS hug that is never-ending and always changing.
The "MS hug" is definitely the most euphemistic term I've ever come across.
Edit: 50% of my MS hug has been reduced through chiro, but the remaining 50% is still too much for me to handle without heavy pain control, so I'll be putting some hope into the IBT pump and another liberation to double-check my Azygos vein with IVUS.