"But you look so good!"
This would have to be the must degrading comment. Looking good, WTF has looking good got to do with anything?
It is frustrating to the nth degree to try to explain to people what you are going through. There are no words to enable someone else to have a true understanding of MS symptoms. Explain to someone the taste of strawberry when they have never had one!
The other 'issue' we have is the tests! The tests for function of body parts, the tests for walking ability, the eye sight tests, the heat intolerance tests, balance tests, strength tests, nerve conduction tests, the urinary/ bladder tests you name it the 'tests' are only able to measure either function or no function. The bulk of symptoms for MSers are fluctuating in early days and can move and change at will. Its almost as though the tests are to humiliate you rather than help find some relief.
There is no test for symptoms in PwMS that acknowledge the difficulty the disease has created. If you are missing a leg you can 'see' the problem!
Can you measure frustration?
Muscles that don't switch off in a neutral position, they vibrate on and off trying to settle in a neutral, no load place. Buzzing, try and measure that and then acknowledge to the patient how debilitating it is to live that way. The words 'I get that too' only mean something to another PwMS, any one else is automatically discounted as trying to 'pity' you.
You learn what empathy really means, and what integrity really is!
The big ones; 'its all in your head', conversion disorder, age, sex any excuse for a Doctor who is lost or unskilled, make the patient doubt themselves and it will go away!