fogdweller wrote:Very important...never ever tell a pwMS that they aren't experiencing a symptom they have described, or that they are imagining it. We have become very sensitive to that.
When I was being diagnosed, (a two year process back before MRI's), I was once told by the head MS neurologist at the Mayo Clinic that I was "paying too much attention to myself" and that there probably wasn't anything that wasn't just in my head.
(when I was finally diagnosed, it was a huge relief and I was able to immediately go of anti-depressants. The MonSter in the closet had a name, al beit a bad name.)
drsclafani wrote:In preparation for my lecture at ISET on clinical manifestations of CCSVI and MS, i wanted to share with a largely inexperienced audience some of the terminology used by MSers (aka PWMS) to describe the MonSter.
I am asking for more such vernacular to describe symptoms and signs of MS with your views of their definition
No rush, by Sunday would be great!
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