Well done Donn!
Can I ask regarding blood thinners and aftercare. What has Dr Makris set down for you? Thanks.
Dr. Makris is following the protocol set up by Dr. Sclafani so he prescribed
Arixtra (fondaparinux sodium) 5 mg in a single dose prefilled syringe.
The drug is packaged in a box of 10 pre-filled syringes, so I was given two boxes by the pharmacist. I took just one syringe with me to Dr. Makris' clinic and left the rest at home.
I am injecting this once a day in my tummy, for a total of 20 doses. The first dose was administered just a hour before the liberation procedure started.
The Arixtra syringe comes apart into three pieces. First step requires you to twist sideways the clear cap (not upwards) to break it free. Next hold the syringe securely and then pull up the cap (it's tight). Be careful, as taking this cap off exposes the actual needle. Kind of pulling the cork out of a champaign bottle-you pull harder and harder and then suddenly it comes off. Lastly remove the cap on the orange plunger side.
I am injecting this once a day (at noon) in my tummy, for a total of 20 doses. The customer service rep for Arixtra said to alternate between the left and right sides of the tummy and choosing a different injection site each time. To make things easier to remember, I inject on the left side on odd days of the month and on the right side on the even numbered days. Do not inject into the "belly button" area.
Arixtra is a product of GlaxoSmithKline. The above booklet gives clear step-by-step instructions on how to self-administer the injection.
The nurse went over how to properly inject this (basically make a skin fold between the thumb and fingers and inject the syringe with the other hand). There's an intentional air bubble in the syringe; don't be concerned about that-just push the orange plunger all the way down after injection.
It has a thin needle and it's basically going into fat tissue, so there's very little discomfort. There's a natural reaction to initially go slowly with the injection but you are far better off just plunging all the way as quickly as you can. If you are squeamish about needles, perhaps a companion can do it for you. After injection, the syringe automatically retracts the needle. It's cleverly designed to be a "one time use" syringe.
Arixtra should be stored at room temperature; not frozen.
I personally haven't felt any bad side effects from this blood thinner. It is very reassuring to know that my treated veins are not going to clot up. Arixtra is meant for treating "deep" (internal) veins, so it is ideal for CCSVI applications.
However, Arixtra is very expensive. I got prescription filled at a local Walmart pharmacy, and was told that this order would be $2,800 if there was no insurance coverage. Dr. Makris said he could order cheaper substitute blood thinners/anti-clotting drugs if patients don't have insurance coverage or if is inadequate. I realize that Arixtra is costly, but then consider the thousands of dollars spent on "MS autoimmune" therapy drugs which are essentially just producing expensive urine.
After the 20 doses are completed
, Dr. Makris recommended taking aspirin 81mg (the so-called "baby" aspirin dosage level) indefinitely if tolerated
. Enteric safety coated aspirin has a delayed release to prevent stomach problems. Myself personally, I can take this without any complications but each person is different and you have to be alert to any adverse reactions.