False Creek-Vancouver - follow-up after procedure

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

False Creek-Vancouver - follow-up after procedure

Postby esta » Wed Dec 29, 2010 2:24 pm

the best experience!!!!!!!!!!!
I finally feel someone cares. they did an ultra sound to show my blood flow was still ok, but best of all, they hired a person with MS who has been to poland, had the procedure, and helps each person amazingly to develop a goal plan for their future within the canadian medical system for follow-up MRI's etc., and the private care clinics for MRV's etc. to ensure the best care we can get for ourselves.
yes, i paid for it, but i am so relieved to know, they are on top of everything.
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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Postby PointsNorth » Wed Dec 29, 2010 3:33 pm

This is good news. I shall book an appointment for my 3-month follow-up!

Thanks, PN
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Postby hope410 » Wed Dec 29, 2010 5:24 pm

Could you tell me how detailed the follow up u/s reports are from FC and how much they cost?

I read on the FC site that Jenna was hired there as a patient liaison. Wasn't she previously being paid to take groups to Poland for treatment?

What kind of advice does she give in terms of a post-treatment plan that you found helpful?
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Postby esta » Thu Dec 30, 2010 12:33 pm

hI HOPE411

Could you tell me how detailed the follow up u/s reports are from FC and how much they cost?
I HAVEN'T RECEIVED IT YET, THE RADIOLOGIST HAS TO READ IT. THE TECHNICIAN WAS TRAINED USING THE ZAMBONI PROTICAL, ITS COMING VIA EMAIL, PLUS A COPY FOR MY GP... THE COST IS $500
I WAS TOLD WHAT I NEEDED TO KNOW UNTIL IT COMES, THAT THE RJV THAT WAS STENTED WAS CLEAR FLOWING AND MY LJV WAS PERFECT.

I read on the FC site that Jenna was hired there as a patient liaison. Wasn't she previously being paid to take groups to Poland for treatment?

I HAVE NO IDEA IF SHE IS BEING PAID, BUT YES, SHE DOES TAKE PEOPLE TO POLAND. SHE IS POLISH, AND WELL VERSED IN THE WHOLE PROCEDURE - YOU COULD ASK HER HOW MUCH IT COSTS TO GO THERE. I WENT AND WAS CHARGED $6,900 EUROS. I WOULD HAVE LOVED TO HAVE HER THERE, SPEAKING POLISH AND ALL.

SHE IS PRO POLAND FOR THEIR THOROUGHNESS IN PAPERWORK AND PROCEDURE.

What kind of advice does she give in terms of a post-treatment plan that you found helpful?
WHEN AND WHERE TO GET AN MRI,MRV, ULTRA-SOUND. HOW TO LIVE A FULL LIFE AFTER TREATMENT BY BEING UP ON THE LATEST VITIES, DRUGS, WEB SITES, WHAT YOU SHOULD EXPECT FROM OUR MEDICAL SYSTEM, WHERE TO GO AS I FEEL UNDER-TREATED, ETC...SHE JUST SEEMED TO HAVE ALL THE ANSWERS AT HER FINGERTIPS, AND SHE SHARED HER STORY. I FEEL I HAVE SOMEONE TO RELY ON NOW I AM HERE. THIS AM I RECEIVED A TRUCK LOAD OF WEBSITES ETC. FROM JENNA, TO GO OVER.
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
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esta
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Posts: 385
Joined: Wed Nov 25, 2009 4:00 pm
Location: Summerland. BC Canada


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