Brainteaser wrote:Hi Erika,
What do you mean by slow flow in stent but stent fine? This sounds problematic - restenosis?
I had a stent inserted in RIJV at valve point, in Katowice in Nov 09. By April 10 it was blocked. Prof Thompson in Melbourne struggled to get the catheter through. At the time, discussing it with Dr Sclafani, he thought it could be intimal hyperplasia.
Prof T has since unblocked the stent a couple of times. He has changed the shape of the stent and commented on one occasion that when inserted it should have had a wider diameter.
I have CCSVI problems other than my stent, and can't help you a lot unfortunately, except to say that maybe your stent/veins could be checked by someone else - maybe in the UK or by the lady in France?
Yes, I remember you had your first procedure only couple of days after me. Dr. Simka did the first follow up 77 days after my procedure. I felt already worse at that time. I do not know what exactly it is to have very slow flow. He had no suggestions at that time. I had my second follow up 10 months after my procedure with him and again - very slow flow, no intimal hyperplasia, no thrombosis.
I cannot financially afford to go anywhere else.
Sorry, my arms are too week, cannot type anymore.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse