Three Month Update

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Three Month Update

Postby CaptBoo » Mon Jan 03, 2011 1:22 pm

It's been 3 months since my journey to Atlanta Access Care to visit Dr. Sullivan. He ballooned my right jug which was 60% stenosed, my left jug which was 40% stenosed and my azygous which had 40% narrowings in two places.

After 3 months I describe myself as a healthy man with a gimp leg. Prior to the procedure I had three complaints, fatique, balance and left leg spasticity, especially when it got tired.

Fatigue: I have not needed a nap since September, I can go all day and suffer no consequences the next day.

Balance: I can stand on one leg, either leg, for as long as I want. I can close my eyes in the shower and use both hands to wash my hair.

Left leg: It's about the same. Since my balance is so much better I don't fall nearly as often, but the foot fall still trips me up some times. It gets a lot worse after I use it a lot.

All-in-all. My MS is no longer a slow death sentence. The leg is an inconvenience, but with renewed vigor I shall overcome and lead a normal life in spite of it.
<div>There be no dragons   ...Reese Palley</div>
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Postby Crystwo » Mon Jan 03, 2011 2:29 pm

Good to hear you! As someone who just had the procedure 4 days ago (and already sees improvment) it's good to hear from people like yourself who had it a few months ago. Keep up the positive thoughts and therapy...more improvment could certainly happen. My doc told us that whatever happens in the first 9 months is typically what you end up with. So you have 6 months of improvments left to go!
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Postby Ruthless67 » Mon Jan 03, 2011 4:00 pm

Great News!
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Postby David1949 » Mon Jan 03, 2011 4:30 pm

That's wonderful news. I'll pray for your continued improvement.
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Postby ATLKimo » Mon Jan 03, 2011 4:37 pm

Thanks for the update Boo! I'm very happy for you!
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Postby CaptBoo » Mon Jan 03, 2011 4:48 pm

It's your turn Jim
<div>There be no dragons   ...Reese Palley</div>
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Postby blossom » Mon Jan 03, 2011 9:56 pm

good to hear you are doing so well. hope you continue to see evenmore improvements.
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Postby CureIous » Mon Jan 03, 2011 10:13 pm

Thanks for the update and assessment, great going so far!
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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