I might have misunderstood something, but it sounded to me that their IJVs were left tied up, so they would have had many years to devlop MS. It would be good to know how he meant it.
It's almost always just one jugular ligated. Sometimes in cases of extreme bilateral neck dissection for cancer, two jugulars are ligated. There can be consequences of this, there's a lot in google scholar on it.
With CCSVI, it typically takes an obstruction in two separate veins, not just one vein. (I know of one patient here who is an exception to this, with just one occlusion; are there more?) So even with a complete ligation of one vein, the flow will go to the other and things should be ok (although I would love to see long-term follow-up on such patients.)
I can relate from my own case, with one jugular at 100% occluded, that was similar to a ligated jugular. Had my other vein been wide open, instead of 80% occluded, maybe I would not have developed MS?
WinniPegGirl, I agree with what others have said, especially Dr. Cumming, that you made your best decision with what was known. For other patients those big balloons have worked, haven't they? It is not across the board collapse of veins. So it could have worked for you too but didn't. I like too what he said about letting your veins heal and that maybe a solution can be found.